Yes they had to change my medicinre i was alergic it

I am just curious...how long has she been on the meds? I have to start these meds on Tuesday. Thank you for your information. And, I really hope your mom starts to feel better and you all get some answers.

From Kay S.
Hi all, it's been awhile. I'm wondering what's wrong w Kate? There's so much on this blog I can't find anything except she's sick? Please someone let us know how she's doing?
Also,to ilg4pe
Your mom should try to hang in there. I had all those side effects but after a full month was much better. I started them slowly and one at a time and I was still sick. I've had 2 negative cultures and am going to meds 3 days per week as my cat scan is greatly improved. Fingers crossed I'll be done w drugs in August. Then hoping I stay clear-
The article on survival rates w Bronchiacstasis really was a downer. I guess we need info but that article was not about MAC and if I'd known that it was something I not about MAC I would not have read. I just worry!

Anyway, sharing some thoughts and being honest. All take care.

So there is hope. 😉

Almost 2 weeks. So she started with the first pills the first few days then the second then the 3rd. She did this to see which ones would give her side effects. Nurses said it was OK to do that. Actually it's smart so that the Dr knows which oness.

Kay S, I have to start taking the meds this Tuesday. So, you were sick for one month, but then you got better after the month? I'm just curious as to how to handle this if I get sick. I hope you stay clear also!! And, I agree that article was depressing, but I think we need to learn to "go with" the more positive stuff we hear. Like how to take care of our body to continue to help our lungs be strong, along with a positive attitude that God will get us through, and live each day and try not to let this condition "rule" us. We can do this! 🙂

Had side effects. Then Denver and my pulmonologist took me off all meds to make sure nothing else was going on. My pulmonologist suggested that I re-start the meds one at a time. I went on first one for two weeks (pulmonologist suggested that it be for two weeks); then a second for two weeks; and then a third for two weeks. New at this but hopefully this is helpful. I also decided that it was time to go on an anti-anxiety pill to help with the "nervousness" and all that it entails. Went to a psychiatrist and am on lorazepam (anywhere from .5 to 1 mg). That is extremely helpful. No shame in that at all; proud of myself for admitting that I needed that kind of assistance. Wishing you better days.

128128terry....How are you doing on the medication? How long have you been on?

@kaystrand I have read Kathryn has Pseud

now read Kathryn is clear of bugs, yay!