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COVID vaccines and neuropathy

Neuropathy | Last Active: 1 day ago | Replies (2172)

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@placitan

Ten days after receiving the J&J vaccine I developed neurological issues. my current diagnosis is Guillain Barre but many of my symptoms top not match up with most common GBS symptoms. I am currently in the process of finding a treatment protocol that works (tried IVIG for 5 days without lasting benefit) So far I am finding very little published data of others who have had similar experience to mine.

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Replies to "Ten days after receiving the J&J vaccine I developed neurological issues. my current diagnosis is Guillain..."

Did you report the reaction to VAERS as an adverse reaction? What does your physician say about any possible connections?
Sue

@placitan- Welcome to Mayo Clinic Connect. This must have been a dismal surprise. Did you have any history of autoimmunities? Had you had any gastrointestinal or respiratory infections prior to the GBS?

There is no known cause for GBS at this time.
https://consumer.healthday.com/b-4-7-no-proof-covid-vaccines-can-trigger-guillain-barre-syndrome-2651377473.html

https://www.cdc.gov/vaccinesafety/concerns/guillain-barre-syndrome.html

How are you being treated for your symptoms now?

@placitan, I had (still have after 6 months) symptoms which resembled GBS after my Pfizer vaccine. But like you, the symptoms aren’t an exact match. I had tingling and burning in both feet & at times my hands & other some areas, right leg weakness, and slight weakness in my arms. Most of my symptoms are better, but as I said, still present. I am interested in what you experienced that led them to treat you for GBS even though they apparently didn’t feel that was exactly what you had. My neuro offered steroids which I declined at the time since I don’t believe in medicating without understanding what’s actually happening. Like you I have also searched for similar reactions and haven’t found much. This forum was the first place I really started seeing connections between the vaccine and neuropathy. Most of what I’ve found here is existing neuropathy becoming worse, or flaring up, but have also found a few others with new onset similar to mine.

Hello @placitan and welcome to Mayo Clinic Connect. You mention that you have been having neurological issues. Are you willing to share a bit more about what those issues were ten days after and if they've changed at all since?