I don’t know if this will be of any help, and it may not be what one wants to hear, but I, too was a childhood cancer survivor have been struggling with a host of mysterious and progressive health issues including neuropathy. I thought that the EBV+pneumonia that dramatically altered my health suddenly many years ago may have lead to chronic EBV, among other theories.
It turns out what I actually may have is the well-studied and documented RICAD (Radiation induced Coronary Artery Disease) with Chemotherapy induced neuropathy. Despite the names, damage is widespread and not limited to heart and nerves. Treatments are available if diagnosed early but not if delayed. Please look into it if you received radiation, especially if to the chest and neck area, or if you received both radiation and chemotherapy.
I have gone undiagnosed despite early warning signs of first neuropathy, then fibromyalgia, chronic fatigue, and liver and lung damage and now extensive heart damage.
I would not want anyone to go through the *heck* both myself and my spouse have experienced, desperately seeking answers for over 25 years.