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Mysterious shortness of breath: What has helped you?

Lung Health | Last Active: 2 hours ago | Replies (3355)

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@tamaracaitlin

Hello everyone. I just wanted to post an update on all the tests I've had since last posting.
To recap, I went to the ER I august 2019 for this new sob. They did a chest xray, two ct scans, lots of blood work and a heart ultrasound. All they found was a small air bubble trapped in my chest cavity. They said it would clear on it's own but referred me to a lung specialist. Since seeing this specialist I've had two pulmonary function tests, another ct scan, many many chest xrays, lots of blood work, a lung scan, another heart ultrasound, endoscopy, bronchoscopy, I wore a heart monitor for 72 hours, and an allergy test. I think that's all, but at this point I may be forgetting a test or two. All of these tests were ordered by the lung specialist and a respirologist and it's not over yet because I'm now waiting for a referral to a gastroligist. All the tests came back perfect except the endoscopy. The endoscopy showed high amounts of eosinophil in my esophagus. Which means I have Eosinophilic esophagitis. This is is a chronic, allergic inflammatory disease of the esophagus. It occurs when a type of white blood cell, the eosinophil, accumulates in the esophagus. This is why I was referred to the allergist who gave me an allergy test but I am not allergic to anything he tested me for. He basically said I'm going to have to have another endoscopy to see if its clearing on it's own and if it isnt there are topical steroids I can take to see if it helps or I have to try to eliminate certain foods to see if a food is causing this.

So they have no idea if the Eosinophilic esophagitis is causing my shortness of breath but this is all they have found so far and are just trying to treat that and see what happens.

I still experience this bizarre shortness of breath every day. But according to the tests, I'm healthy. My heart and lungs are great, so I still don't understand what is causing this.

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Replies to "Hello everyone. I just wanted to post an update on all the tests I've had since..."

@tamaracaitlin- It is so very frustrating, isn't it? Have you sought any kind of anti-anxiety meds for this?

I’m experiencing the same shortness of Breath and they are going to look at my esophagus as well let me know if treatment for your esophagus cures your shortness of breath problem