1. < Autoimmune Diseases

Possible myastenia gravis

Posted by jenhuf1975 @jenhuf1975, May 21, 2021

10 years no dx but have every textbook symptom but droopy eyelids
My bloodwork doesn't show mg but I could be serium neg but positive for high ANA and white blood count says they could only find sjorgen
Lost ability to walk 9 years ago
Working with 1 finger
Went from singing to having to over articulate every speaking word
No longer have a sense of humor
Eyesight is terrible
Nobody is competent
I live close to Dallas-Fort tx
Also er visit on May 6 said I was pregnant
Hello I am 45 abstinet tubes tied and burned in 06 after having my youngest who is 15
Partial hysterectomy in 12
Er doctor didn't believe me but doing more testing showed I was not pregnant but have extremely high white blood cell count
He then said well it could be cancer and shrugged his shoulders.
A nice nurse came in my room and said
You have signs of lambert Eaton and usually lems patients have small cell lung cancer
But get thymus checked you can have a thymoma as bad as you are I guarantee it
But I can't find help
What to do

HELP

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Mentor
Becky, Volunteer Mentor | @becsbuddy | May 21, 2021

Hello @jenhuf1975 welcome to MayoClinicConnect . I’m glad you found us. This is definitely the place for people to share information and ideas and get help. No one here is a medical professional so we can’t diagnose or prescribe medications. But we all try to help.
You’ve certainly gone through many health problems over the years and you mentioned myasthenia gravis. Has a doctor properly diagnosed you with this? What has she said?

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2 replies
miniide | @miniide | May 22, 2021
In reply to @becsbuddy "Hello @jenhuf1975 welcome to MayoClinicConnect . I’m glad you found us. This is definitely the place..." + (show)
@becsbuddy

Hello @jenhuf1975 welcome to MayoClinicConnect . I’m glad you found us. This is definitely the place for people to share information and ideas and get help. No one here is a medical professional so we can’t diagnose or prescribe medications. But we all try to help.
You’ve certainly gone through many health problems over the years and you mentioned myasthenia gravis. Has a doctor properly diagnosed you with this? What has she said?

Jump to this post

My mother-in-law is a myasthenia gravis patient and has had a thymectomy and is a diabetic.They also take drugs such as Immutil and Gravitor. They were once given immunoglobulin.
What is the opinion on giving covid vaccination in the current case of covid 19. Can immunity be obtained. Is there any risk in it?

REPLY
MGMolly | @Erinmfs | May 22, 2021

no mention of a neuro opthamologist. I see a neuro opthamologist to diagnose myasthenia gravis, and a neurologist. I'd recommend a consult if you believe it's MG.

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jenhuf1975 | @jenhuf1975 | May 22, 2021
In reply to @becsbuddy "Hello @jenhuf1975 welcome to MayoClinicConnect . I’m glad you found us. This is definitely the place..." + (show)
@becsbuddy

Hello @jenhuf1975 welcome to MayoClinicConnect . I’m glad you found us. This is definitely the place for people to share information and ideas and get help. No one here is a medical professional so we can’t diagnose or prescribe medications. But we all try to help.
You’ve certainly gone through many health problems over the years and you mentioned myasthenia gravis. Has a doctor properly diagnosed you with this? What has she said?

Jump to this post

I can't see a neuuro because nobody believes me

REPLY
Moderator
Colleen Young, Connect Director | @colleenyoung | May 26, 2021

@jenhuf1975, I strongly recommend that you seek a second opinion from a large medical center. If you wish to request an appointment at Mayo Clinic, here is the information http://mayocl.in/1mtmR63

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