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Post Interferon Syndrome

Infectious Diseases | Last Active: May 4 4:08pm | Replies (513)

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@tpatty5

Just found this...I was treated in 2006 for Hep C at the Miami VA hospital....1st was i interferon/Ribavirin 48 week treatment....3 months later...viral load was high...can’t remember...really high...within a year...new drug, Bocepriver spelling? they did another 48 week treatment ....I was very hesitant...no...no more. I was told my biopsy showed my liver in 3rd stage...it’s a must...the new drug was specific to people who were geno type 4....me!
That was hell....I am now 66...female...do the math...brain fog.

After that treatment they said I was cured....I was thankful it was over and Hep C gone...
It started subtle...I would tell my husband...Don’t feel right....I used to workout ...really active...instead of feeling the burn at the gym...it felt like a flu feeling....
Tired all the time...something was off...I questioned the new drug...boceprever...sorry, I know I’m spelling it wrong.

My husband was diagnosed terminal cancer in 2017...
10 months later he passed...😢 In it all...I was a nightmare...couldn’t handle anything...
I assumed it was all related to his illness ...so sick...his death...and of course it was! It was horrible.

After ...I was a mess...assuming...Who wouldn’t be?
In Jan 2019..my sister came...she said your dying...I lived in bed...couldn’t function...
With her insistence...I ended up at Dr
I live I Fl...I thought people must think I’m a druggie...all wrapped up..cold...always crying..light sensitive...sunglasses...always was thin...but booked anorexic....
Filling new patient was a big deal..
I did put treatments down...
Dr saw me...immediately questioned me about treatments...looking confused almost...They did 2 48 wk treatments basically back to back...
I was apologizing for my appearance..sunglasses..my eyes...wrapped up...
Thought she would assume I did drugs...

Btw..it was an Endocrinologist...always has thyroid issues....told my sister...my levels are off.

The Dr. took me into ultrasound room...I was so happy to lay down,..and it was dark...
She’s talking to young gal ....thyroid is gone or something like that..I thought she was talking about another patient..
No, it was me...

Hard to explain or remember detail...but, was confused.

She was so kind and really pissed that they gave me basically 2 yrs of this poison.

Here I am..May 2021...same Dr. ...can’t get levels right...She gets it...but can’t fix it.

Now, I feel like a recluse...mentally...forget it...I’m like an invalid....and any type of excursion...I’m down for days....

I have 3 beautiful grandchildren....3 sons...their wife’s ...truly blessed...
I cry all the time...I’m missing out n so much..They worry about me...So I become more isolated to protect them.
I can’t ...the normal trying to help...
Eat better..get out more...be more positive....
I’ve tried ...I can’t...I dot want them to worry....

I can’t...I don’t take pain meds like I’ve read on some of your posts....it’s not pain..it’s flu feeling...short of breath...

I found this...searching for treatment of thyroid due to interferon.
So, I hear ya.
It’s a very dark state of mind...I admitted to my Dr...I can’t live like this...she knows well enough now...my personal beliefs....I won’t hurt myself...not to say thoughts haven’t been there.
But, I ask God to take me...I’m done..I’m tired of being so physically and mentally messed up.
I know isolation has made it worse...mentally...but, it so hard...I don’t want my family to worry and it’s hard to fake...
I’m not a pot smoker..but, I will or have if ..like Xmas...at least a temporary mask. Unfortunately, the pot physically makes me more tired after it wears off...and more depressed...
So, very rare...it’s a bandaid.

Ok..I’m done...going to add pic...taken not long before my husband was diagnosed....I think it was Easter 2017...his hospitalization was the following July 2017.
💕🙏💕🙏💕

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Replies to "Just found this...I was treated in 2006 for Hep C at the Miami VA hospital....1st was..."

tpatty5, I know it's HE_ _ . Please read my long post on page 33. I found recovery and give details. Blessings, Lisa