Good grief! Sounds like malpractice to me, Terri. Here is a question for you all - I was just getting ready to make some Crystal Light and went to reach for the faucet to fill the container with tap water and stopped myself midstream. Clearly, tap water is no longer something that I want in my system. Can't use the water from the refrigerator dispenser either. So can I assume that powdered drinks are no longer anything that I can have? Was just diagnosed in December. Linda

<br><br><br><br><br>I talked to the Mayo about it, they said I should have been put in <br>twighlight. I had a gut feeling that dr was out to be cruel on purpose. I will <br>never let that happen again.<br> <br><br>

<br><br><br><br><br>Thank you Katherine. No one has ever appreciated what I had been put <br>through when that happened. During that same procedure, that dr shoved the <br>tube down into my lungs hard and it jammed into the very bottom of my lung. (all <br>the while being held down by two males) I thought I'd go through <br>the ceiling.  That, after feeling like you are being suffocated from <br>the tube in your throat and cannot get air. My drs at the Mayo said that would <br>NEVER happen their facility. Thank God, because if I were to ever get that lung <br>transplant, you have to have a bronch every three weeks at first.<br> <br><br>

<br><br><br><br><br>It was horrid.<br> <br><br>

@windwalker, Terri, I love the saying "When we KNOW better .. we DO better!" Terri, that is so true for each and every one of us. You have learned though our community how to be your own best advocate .. have educated yourself on our shared MAC disease .. NOW it would NOT happen to you .. but it is the past .. leave it there .. create happy positive thoughts in the hear and now because today will never come again .. tomorrow is not here yet! I am sending you a HAPPY Hug! Katherine

@lindam272, Linda I am going to quote one of our Members because I just LOVED it .. I felt SO strongly that it brought SANITY to this subject .. I am going to quote it CONSTANTLY because it makes SO much sense for all of those with MAC! Again, thank you @maryjo2sell .. Mary Jo !Hugs to you Linda and all! Katherine

I LOVED THIS NOTE OF SANITY FROM MEMBER @maryjo2sell .. Mary Jo
Just to join the discussion I think sometimes we can get carried away with prevention and protection from mycobacterium. We can filter our water pipes at home, then go to a restaurant and drink their water and use their ice cubes. We take a walk and pass water vapor from an air conditioner or a beautiful, decorative fountain. We work in our yard and get bacteria from the soil. There is no bubble. We should be cautious, but I don't think any of us truly know how we got our NTM. (non-tuberculosis mycobacterium). I got mine (Kansasii) years ago and was asked did I go to a foreign country. No-and I still have no idea how I got it while my husband and kids did not. I keep my faucets cleaned out and my shower heads, but I just went to a hotel when I went to Mayo. I doubt they cleaned their shower heads! So some prevention is good, but we have to live.

p.s. After I read Mary Jo's note I thought about I had just been to a movie the night before .. had a soda out of THEIR faucet with IT'S biofilm and had ice cubes from THEIR machine .. had not even thought about it! Plus had dinner at a restaurant before that .. just think about that .. heavens protect us!! Mary Jo is SO correct in bringing sanity to our conversation!

<br><br><br><br><br>Hug received! Big squeeze back. Yeah, I am over that past experience. Just <br>will never forget it!<br> <br><br>

<br><br><br><br><br>Hi Pam! We all understand your fear. I am just now getting caught up on <br>these posts as I have been out of town. I am sure you have gotten many answers <br>by now. 1) they DO sedate you or put you in twighlight for bronchioscopes now 2) <br>they have you inhale saline solution to induce sputem production and bring it up <br>for a culture. Please do not worry, they have come a long way in how they <br>do procedures these days. I even had a totally painless Blood Gas Test two <br>months ago! -Terri M.<br> <br><br>

Thank you, Katherine and Mary Jo! That does put it in perspective! Linda