@birdman ... 1st time I've actually posted in this Mayo Clinic Connect system so hope I'm using it correctly.

Coincidentally, I'm amazed at how similar (from a 100'000 foot level at least) your post sounds like my own situation ... except my current status and symptoms look like they are probably 3-4 years down the road from where you're just starting from (i.e. "The next step is ... etc."). For what it's worth, I'll plan to come back to this post at a later time and expand on my experience ... you probably will be able to relate to it and it might give you things to consider as you continue to look for a diagnosis (/ cause) and possible treatment.

John

PS: purely coincidentally again ... just yesterday, I returned from an appointment with a 2nd neurologist that the 1st neurologist I had been seeing for a few years, had referred me to.