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Hyoid Bone Syndrome

Ear, Nose & Throat (ENT) | Last Active: Oct 14 11:43am | Replies (76)

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@lynniecat

I have the exact same problem. These attacks are horrible. The pain is in my ear, face, under or behind my tongue, teeth, under my jaw, neck and sternum. It’s been a year since the attacks started and I never know when they will strike. I have been to a bunch of doctors and eventually they thought it was variant angina - but the meds do nit seem to work (nitro when the episodes are active and a calcium channel blocker daily for prevention). The strange thing is that the location of the pain does not fit anything except hyoid bone syndrome. Thud describes it perfectly. I could have multiple attacks in a week or go a couples months without one. The can last minutes to hours. The pain is debilitating. It’s intense, stabbing, aching pain. It also seems to move around with some areas getting more and less painful. Hope you check thus thread. It’s been 6 months so perhaps you were able to find someone to check for thus syndrome.

Lynn

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Replies to "I have the exact same problem. These attacks are horrible. The pain is in my ear,..."

Hi Lynn, welcome to Mayo Clinic Connect. Have you been diagnosed with hyoid bone syndrome? What therapy or treatments help you?