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Mac question: Arikayce Inhaler Antibiotic

MAC & Bronchiectasis | Last Active: Mar 5, 2022 | Replies (73)

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@janeta

Thanks for your comments about the Clofazamine - I really am nervous about taking it. I previously had some serious adverse side effects from the main antibiotics (Rif and Eth) and had to stop taking them. I am currently taking the second-string of antibiotics which I understand are not as effective. 🙁 I've had digestive issues and diarrhea since Oct (when I started with Meropenem IV) since I've been on this alternate 4-atb regimen. (btw ... a little puzzled since amakacin and Arikayce are the same, aren't they?) *** anyone else taking clofazamine?? ***

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Replies to "Thanks for your comments about the Clofazamine - I really am nervous about taking it. I..."

I took amikaycin first because of insurance. I did take it inhaled. The difference between the two is how it is delivered. Arikayce is enclosed in a fat globule. My side effects were a little different but with both I developed a lump in my throat.
Thank you for the information on the other drugs. I had not heard of them. I have never completely been free of the bacteria since I was dx in 2002. This is my 3rd time on meds. Wishing you complete recovery!!!