Hi there/ this is my second time posting for fatigue with a more clear idea of what’s going on. Admins, if you could direct me to where we tell our crazy medical stories I will share now! 🙂 waiting for BMB DX but looking like familial polycythemia. I have a Vera DX but got a second opinion. (It’s an odd case, new mutation). They are not committing yet. Will probably transfer to Mayo for the “more rare causes- the familial” or a thalassemia. Labs are all conflicting. One says yes, or no, BUT etc

After the birth of my daughter I got even worse, and that’s when they discovered the PV and RA, labs etc.

My question: is anyone getting prescribed a stimulant for their condition? One of my doctors said I’m not “anemic enough” for a transfusion, (red high, platelet stable, but the cells are very small. MCS MCHC MVC 24, low. I am taking a prescription for Phentermine for weight loss online and it has helped tremendously with fatigue. I’m sure this is not okay to do, but it’s the only thing in years that has touched the fatigue. Can you get a stimulant prescribed for your fatigue? I’ve heard mixed comments. I feel like a drugged asking. But they just always say drink water and wait for your labs.

Thank you all and gosh bless, and stay strong!

Nicole & fam