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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 2 hours ago | Replies (6019)

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@bellabray

My name is Victoria & I was diagnosed approx. 8 moths. Ago with CRPS . After having a lumbar back fusion. I had two nerve blocks by a pain management Dr. 5 wks. After my surgery but had no relief of my pain. At first my legs and feet were mottled , red and purple with pain, burning and swelling. Now at 9 moths. Post surgery I am still dealing with pain & burning. I am on gabapenton & I occasionally have to take Vicodin (lowest dose) I believe that at this point the gabapenton is making it worse. My blood vessels in my feet and legs bulge out & I’m getting areas of vericose veins. I’m just wondering if other people feel gabapenton is making things worse. In the beginning my pain and burning was mostly in my feet and ankles. Now I have pain and swelling in my calves and legs. I’m retaining a lot of water in my legs. I would appreciate any input.

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Replies to "My name is Victoria & I was diagnosed approx. 8 moths. Ago with CRPS . After..."

Hello @bellabray, Welcome to Mayo Clinic Connect, a welcoming online community where patients and caregivers share their experiences, find support and exchange information with others. Sorry to hear you have pain and swelling in your calves and legs along with the pain and CRPS. You might find reading through the following discussion helpful to meet others with CRPS.

CRPS - anyone suffering with complex regional pain syndrome: https://connect.mayoclinic.org/discussion/crps-anyone-suffering-with-chronic-repetative-pain-syndrome/

I had swelling and was retaining fluid in both of my legs and was diagnosed with lymphedema and now wear compression socks which help keep the swelling down. They first did an ultrasound of the legs and then I had a lymphoscintigram which is when I was diagnosed with lymphedema. Have you discussed the swelling in your calves and legs with your doctor?

Gabapentin is definitely not helping me withPN