Connect
← Return to At a loss, multiple consultations still no answer...any idea?
Discussion
At a loss, multiple consultations still no answer...any idea?
Autoimmune Diseases | Last Active: Nov 28, 2023 | Replies (338)Comment receiving replies
Fortunately, there is a wealth of medical resources on the internet. So, I know I can’t diagnose my ongoing, as yet undiagnosed symptoms, I nonetheless have some leads based on what my neurologist thinks and my labs. So like yourself and others in this discussion I’ll keep up my research while I continue in my queue to see the specialists! At least I’ll have the knowledge to question what they say if I’m not sure I agree with their recommendations.
Replies to "Fortunately, there is a wealth of medical resources on the internet. So, I know I can’t..."
@athenalee You are so right; there is a wealth of information on the internet. But there is also just as much misinformation. Most people have a really difficult time deciding what’s trustworthy and what’s a scam. As an oncology nurse, I frequently met people who were trying something “they found on the internet.” Sometimes they were trying a supplement that actually had chemotherapy drugs in them. But not ones the doctor wanted them to use.
Check out this discussion in the Just Want toTalk Group:
https://connect.mayoclinic.org/discussion/how-do-you-identify-trustworthy-health-information/
Connect
Indeed, it gives you some scope but at the same time it is also overwhelming. That's where it is extremely helpful that you can discuss what you are going through before you stumble down the wrong path. Please update me when you hear anything, all the best.