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Liver transplant - Let's support each other

Transplants | Last Active: 4 days ago | Replies (1617)

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@gman66

Anybody here waiting for, or already been transplanted for HCC? Just curious what were, or if you had any symptoms pre TX?

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Replies to "Anybody here waiting for, or already been transplanted for HCC? Just curious what were, or if..."

Hello @gman66 and welcome to Mayo Clinic Connect. It sounds like you may be preparing for this procedure and would like to learn from others what could be expected.

Both @rosemary and @athenalee have been recent contributors to this conversation and confirmed they have had liver transplants so may be able to provide you some helpful information as well.

Here is some information I found that may be helpful in the meantime.

- Mayo Clinic Streamlines HCC Treatment:
https://www.mayoclinic.org/medical-professionals/digestive-diseases/news/mayo-clinic-streamlines-hcc-treatment/mac-20430425
Can I start by confirming that you are asking for yourself?

@gman66, I want to say Welcome to Connect. I am a liver and kidney recipient, and I am aware that there are many different symptoms that we, transplant patients, might experience.
Are you listed for, or considering a liver transplant? Have you already had a transplant? What are some of the symptoms that concern you? I would like to help you find answers.

@gman66, There are some new responses that address your concerns about symptoms and transplant for HCC. I want to call your attention to the personal experiences that @silverwoman and @athenalee have shared.

What kind of questions would you like to ask them?

@gman66, I would like to tell you that I am thinking about you as you complete your evaluation process. Even though you have not heard from other HCC patients as you had hoped for, I assure you that those of us who have had liver transplants, are ready and available to share from our own experiences.
How can we assist you as you move thru the evaluation process? Do you have any questions?

Hi I am 5 months post transplant diagnosed with HCC, cirrhosis,fatty liver and liver failure all in one day at Mayo! I was sick for years and misdiagnosed from other so called drs. Had y90 in Aug tumor was rendered non viable got on transplant list and 6 months later I was blessed. I had to go for thoracentesis 3x week removing 2.5 liters each time I was drowning ..today I am doing great! Only complaint is weight gain but I'm working on that I wish you much success And if you're fortunate enough to be going to the mayo clinic you are in the best hands in the world. Good luck!