@ginak- Welcome to Mayo Clinic Connect and the lung health group. Yes, it has a name and is the nemesis of a lot of people. I don't think that pulmonologists realized that through all of the other lung diseases that plain ole' SOB could be a problem and that there was a need to deal with even if no known cause was found. It's so difficult for some people to get a diagnosis because a lot of it is subjective with asking patients for their histories but not having the tools, a machine, or some other thing to find the cause. Some doctors don't deal with it well because it is so difficult to diagnose as an illness by itself.

Here is a history questionnare that has been given out to patients:

I am assuming that you have a pulmonologist. Have you addressed this with her?