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Mysterious shortness of breath: What has helped you?

Lung Health | Last Active: 4 days ago | Replies (3422)
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@ginak

I was Dx with Bronchiectasis and NTM from a CT scan in 2016. Dr. asked me if I had any shortness of breath. At the time I didn't even realize that I was experiencing shortness of breath. But, I can remember many years ago, LONG before my Dx, asking my mom if she ever felt like she needed to yawn and just couldn't. I didn't know THAT was shortness of breath. I still get that once in a while. I do know that when it happens, then it seems to happen more, the more I am aware of it. Never really realized what causes it. And never knew that it had a "name".

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Replies to "I was Dx with Bronchiectasis and NTM from a CT scan in 2016. Dr. asked me..."
Merry, Alumni Mentor | @merpreb | May 7, 2021

@ginak- Welcome to Mayo Clinic Connect and the lung health group. Yes, it has a name and is the nemesis of a lot of people. I don't think that pulmonologists realized that through all of the other lung diseases that plain ole' SOB could be a problem and that there was a need to deal with even if no known cause was found. It's so difficult for some people to get a diagnosis because a lot of it is subjective with asking patients for their histories but not having the tools, a machine, or some other thing to find the cause. Some doctors don't deal with it well because it is so difficult to diagnose as an illness by itself.

Here is a history questionnare that has been given out to patients:
https://www.oxfordmedicaleducation.com/history/shortness-of-breath/
I am assuming that you have a pulmonologist. Have you addressed this with her?

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