@francisanne, Welcome to Connect. I am happy that you have joined our transplant discussion group and I commend you for the courage that it must have taken for you to reach out and to share your personal struggle with us. I am a liver and kidney recipient, and in the beginning, I also questioned, even doubted that I would ever need a new liver or kidney. Boy, was I wrong! As soon as my health began to go downhill, I knew that my doctors were right, and I didn't like it.
You are correct to mention "Quality of Life" . And you also say that your doctors are saying that this is going to get worse. I encourage you to listen to the doctors. Even though you feel great today, you might not feel good in one month. I know that is ugly to say, and I do not say it to offend you. It is what happened to me on my journey to transplant.

Your active and healthy life as well as your positivity are going to work in your favor. The process in October must be evaluation. And it will be the evaluation that will identify whether you are qualified medically to be placed on the transplant waiting list. I encourage you to go ahead with the evaluation so that you will be monitored, and ready if/when your lungs fail you.

I hope to hear soon from someone with lung transplant experience. While we wait, what is your biggest fear/concern about a lung transplant or the lung transplant process?