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Making an appointment with Mayo for Lupus.

Autoimmune Diseases | Last Active: May 4, 2021 | Replies (9)

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@laurenavery22

My lupus doctor here I only see every three months so I called him today to tell him about everything new going on. He sent me to get more labs drawn and for a specialist to go see. I got labs back today as well from last week that showed low vitamin d levels which I’ve never had before and all my bilirubin levels total, direct and indirect all being 2x higher than they should be and they have been that way for 3 months now. No one seems to be worried about it. I also had low platelet count. I was bawling this morning because I know something is wrong and it’s like no one can figure it out. I’m exhausted. Physically and mentally. I’m tired of the unknown answers and feeling like this. But it seems like no one else is worried except me. I know I’m not a doctor but I also know my body and know this isn’t normal to feel this bad.

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@laurenavery22, if you wish to pursue a second opinion at Mayo Clinic, here is the contact information to request an appointment at any of the 3 locations: AZ, FL or MN http://mayocl.in/1mtmR63

You are the expert in you. It is important to find doctors who include you as part of the team.