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JAK2 Mutation, Low Iron and High Platelet count

Blood Cancers & Disorders | Last Active: May 24, 2021 | Replies (68)
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@damari

I was diagnosed with ET and Jak 2 I was taking a baby aspirin daily though platelets are in 600's Then I had a low iron count and was told to take iron supplements.. That worked but soon my hematocrit went past the normal scale. Dr. tested for EPO That value came back low. Now he reclassified me with PV though other values are still in ET range. QUESTION: Can iron supplementation affect an EPO value? Can a low EPO revert or is it permanent indicating a new situation? Doctor is suggesting phlebotomy. How serious is PV . Quite worried!

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Replies to "I was diagnosed with ET and Jak 2 I was taking a baby aspirin daily though..."
Colleen Young, Connect Director | @colleenyoung | May 4, 2021

@damari, were you not able to get an answer from your doctor regarding iron supplementation and its possible affect on EPO value? I know you are quite worried and think you need to keep asking your doctors questions until you feel confident in the care and understand your condition of PV or ET better.

In the meantime, I wonder if @mjpm2406 @stevehurlburt @pattitoo @helen2209 @levieta @trillium might have more info for you.

Damari, when do you see your doctor again?

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