Low T-Cell - Bone Marrow Biopsy

@mariabrat. Hi! It’s great to hear from you too!
I just spent 45 minutes writing a letter to you and it disappeared when I sent it! arghhhh. I need to take a break now. Giggle...yes, this is me dealing with stress. I’m going for a walk but I’ll be back later and we’ll “chat” again after my head clears!!

It’s later in the afternoon for you, so I do hope you had a pleasant day! Hugs! Lori

ahah wow!! Sorry that it got erase. 2 updates since yesterday....I did an allergy test and they also tested some viruses and EBV came out positive on reactivation ?!?? which makes me think I might have some kind of chronic EBV that could create a bunch of issues from what Ive read online. Also the 🧬 department accepted to do my full genome testing yaaaay but they asked for my parents DNA which will be complicated as they are in Canada. I will speak to my doctor next week and we will see what he thinks of all that.

@mariabrat You are not going to believe this! Part of my lost message yesterday was asking if you’d ever been tested for Epstein Barr Virus or Lyme disease. I’d looked at your original posting again and kept running through the symptoms; sore glands, low white blood count, mouth sores, fatigue, tenderness in spleen area.
EBV is one of the viruses I’m always being checked for post transplant! 😉 The symptoms just fit!

You have to be breathing a sigh of relief with the news. It will be interesting to hear what your doctor has to say. ☺️

I tested negative in October when my symptoms started but when I look back at the results they are also high so maybe each lab as a different interpretation! Id be curious to hear what my doctor say 🙂 I hope you’re enjoying your weekend

I think you should become a doctor 😛

You’re too funny!!! The world would never be ready for Dr Lori. Ooo But I could have my own tv show. 😂. Hahah no...my face is not “made for public viewing”.

Let’s just say, by the time someone gets my age, if one pays attention, you pick up valuable insights along the way. My being an information junky with a fascination for medicine and science, along with life lessons, education, years of being the caregiver in the family, and my medical experiences over the years have given me a pretty reliable intuition.

That’s what Connect is all about. It’s people coming together to relate their experiences, or share what they know to help other members. I wish I’d known about Connect when I was going through all my cancer treatments. But I’m here now to offer help and hope.

And now you’re gathering your own insights and observations to tuck away for future reference. You are in a position to help others too! ☺️ We’re like one big happy family here on Connect. Except no one is having a veggie fight at the table tossing peas. LOL.
Have a delightful weekend! Lori

LOL! Why not a tv show as well 😀 Its interesting how this place can give hope. I believe we sometimes feel very lonely in our respective life when dealing with health topics. By curiosity, have you ever met in person the people you’re chatting with on this forum? I truly hope I can help someone else too in the future...I feel like Im getting quite good with medical terms too, it feels a bit odd when speaking with friends - They are so out of it or I’m too in it 😂 They usually say that its the weather or the lack of vitamins causing my issues...

@mariabrat It’s messages like yours that validate why this Connect community is so important. The members truly are in a position to provide hope and encouragement for each other. I’m really proud to be a mentor with this forum and so happy that you found us! ☺️

You have a kind heart and a keen insight yourself! I have no doubt you’ll be seeing conversations in Connect where you’ll be able to jump right in to the rescue! Don’t hesitate to do so!

I had to smile when I read your comment, “I feel like I’m getting quite good with medical terms too, it feels a bit odd when speaking to friends - They’re so out of it or I’m too in it.” Until someone goes through it themselves it’s really difficult to comprehend or relate with the proper empathy.

That happens frequently to me as well. With AML, it only took 3 weeks from my first symptom to being gravely ill. During the first week, one of my closest friends, when I told her how weak I was getting and didn’t know why, she asked if it wasn’t just seasonal depression. 😂 And of course, there are others who felt I should taking herbal extracts. Sadly, they meant well, but leukemia doesn’t have a quick fix and certainly wasn’t weather related!

In my opinion, it’s encouraging to learn that your EBV results are positive. Much better diagnosis than what’s been going through your head, right? 😉 I know it isn’t making you feel physically better at this time. But It really explains everything that you’ve been going through and now there is hope on the horizon for you!

Today is just a gorgeous day where I live. Sunny, blue skies and unseasonable warm temperatures. Flowers are blooming everywhere! A mock cherry tree off our deck seems to have exploded overnight with snowballs of white flowers! Spectacular!
Have a lovely day! Lori ☺️

@mariabrat I forgot to reply about your question...have I ever met in person the people I chat with? No, I haven’t and likely will never do so. That’s part of the beauty of this site for the anonymity for the community members. People will speak more openly if they can keep their identity private. However, there are a few members I chat with whom I know would be great friends. ☺️

Hi out there all of you! I have pancytopenia: does anyone else have this and would want to share? I have read many items about this but it seems to me there should be more information or details. It seems that there is no in depth treatment for this except wait to die after 10 or more years. Should there be more research re this or has it been decided that there is not much that can be done for this. EXCEPT; Bone marrow work ups and possibly introducing whatever into the marrow. (I am just a lay person). PS: B12 shots do not help also taking the B12 pills, etc. Sorry to sound so down but I have been going to a very good and informed doctor who knows their stuff for many years but this insidious problem continues on its deadly path. I am a senior but to think that the children who have this suffer and die a very early death. I hope I have not said anything wrong or out of place and do appreciate the doctors and am sure they are just as concerned as I am. Still Hopeful and hanging in there.