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DiscussionAnyone have experience with Antiphospholipid syndrome (APS)?
Autoimmune Diseases | Last Active: Jun 5, 2023 | Replies (20)Comment receiving replies
Replies to "Hello, is anyone caring for APS syndrome? For young teenagers?"
Yes, I can see this post is 2021, so I hope you are still on here, my 14 year daughter has just be diagnosed - see really wants to connect with other teenagers with this - please contact me.
Hello @brendamorales1, Welcome to Mayo Clinic Connect, a welcoming online community where patients and caregivers share their experiences, find support and exchange information with others. @elaine1809 @soitis4590 and @colettehellerud have discussed Antiphospholipid syndrome and may be able to share their experience.
While we wait for other members to share their experience with you, the following articles may provide some answers to your questions.
-- Top 10 Points Patients And Families Should Know About Pediatric Antiphospholipid Syndrome: https://www.hss.edu/conditions_top-ten-points-pediatric-antiphospholipid-syndrome.asp
-- The Differences Between Childhood and Adult Onset Antiphospholipid Syndrome: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6277799/
I am sure this has to be difficult for you. Are you able to share how your teenager is handling or coping with the diagnosis?