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Low T-Cell - Bone Marrow Biopsy
Blood Cancers & Disorders | Last Active: Nov 15, 2022 | Replies (162)Comment receiving replies
@mariabrat Hi! It’s been a few weeks so I just wanted to touch base to see how you’re doing.
Are you feeling any better? The past months have been really mentally exhausting for you so I hope that you’re growing stronger and improving each day.
As you’ve said, “Celebrating life is important!” What have you been doing this month to keep your spirits energized? I spend time with Mother Nature. LOL. She keeps me entertained with all the wildlife, flowers, trees budding... Today, I see we’re getting an addition built onto our house! A robin is building a nest right next to our back door on the light! ! I’m sure we’ll be dive-bombed every time we step outside. Oh well, babies will be fun to watch!
Take care...sending positive vibes ‘across the pond’ Lori
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Hi Lori! 🙂 It is so refreshing to hear from you!! How have you been doing? I am so glad you're spending time outside and it is so cute that you're getting some company 🙂 Do you have a lot of nature/parks around your area? How is your health?
I wish I had some awesome news for you! Well, I do not have really bad news either, but I'm unfortunately not getting any better. I am having a bunch of weird symptoms from the tongue, stomach, & neck glands soreness, cough & no appetite. The full exome sequencing didn't reveal any diseases. I am not sure how familiar you are which those scientific terms 😉 but it means that there is still 2% of the DNA that is not covered in this test. To get 100% we need full Genome testing which is not covered by the insurance. My doctor is trying to get special approval from the genesis department yayy (crossing fingers). In the meantime, I went to see a rheumatologist but they are clueless. I did some additional autoimmune blood test (still waiting) and sonography of the neck which doesn't show swollen lymph nodes. I also went for an allergy test out of desperation LOL. It seems like there something "consuming" or not producing my T-Cell in the bone marrow and I am much desperate on what to do next. Could it be that this gastroscopy or MRI missed something? Could this still be cancer? This is still in my head.
My partner had to fly out of Germany because his best friend was given 1-3 months to live. After only a few days she died while they were asleep in the same room. It's crazy because last October she was fine. I believe she had a wrong diagnosis initially (she is living in Serbia) and things progressed super fast. My partner is away for another month to process this with the family there so it's a bit of a rough time. It is so sad to see someone so young die like this. I am trying to give space and take care of myself. Hopefully, in June we can take a month somewhere by the beach and do nothing but enjoy life.
In the meantime, I am trying to remain positive, I have to admit that I feel like I am lacking resources...But hey, I didn't want to sounds too negative here. I am still enjoying those walks with friends, exploring new coffee shops, reading and watching more, and try to focus on work and personal development. 🥰