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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
@dianelobosco .. Hello .. may I call you Diane? SO glad you found our Forum! It sounds like you are really going through a tough time! A lot to go through! PLEASE do not be so afraid! We ALL have been down this road .. we will be with you hand in hand now .. through out this journey of yours .. our SHARED journey .. we have ALL been down this SAME road as you have now started. We ALL were scared like you are right now.
BUT you will find IF as you have time that you read through the past pages of the Forum .. you will see that EACH of us has had a different journey through the treatment and disease .. BUT we are coming .. or HAVE come out on the other side. Please do keep coming back .. ask any questions you have .. we will be here for you .. you will find really kind supportive people here who will support you through this journey. Sending you a Big Hug in this tough time. Katherine
Replies to "@dianelobosco .. Hello .. may I call you Diane? SO glad you found our Forum! It..."
FYI
@melrosedecosmo started a separate discussion topic in the MAC group on this topic. See:
- Aerobika device shows promise for treating bronchiectasis exacerbation http://mayocl.in/2jcjDCB
Also, @kaystrand started this discussion topic:
- Negative Sputum Cultures http://mayocl.in/2jo1t3Z
See all discussion topics here: https://connect.mayoclinic.org/group/mac-bronchiectasis/
Colleen, I saw the same article as Rosie .. that is why I asked the question of @cila, Cila .. since Cila has experience with the Aerobika . There are no responses on Rosie's thread yet .. would like some Aerobika answers on this Forum since this is where MAC people usually look and that article was actually directed to Bronchiectasis (which of course many of us also have).
What concerns me is that many people just google MAC .. end up on this thread .. don't have a clue there are many discussion topics/threads under the Heading of 'MAC & Bronchiectasis ' .
FOR NEW PEOPLE .. THIS IS THE LARGER DISCUSSION HEADING TO GOOGLE TO GET ALL THE THREADS
https://connect.mayoclinic.org/group/mac-bronchiectasis/
It is great to have so many options .. but sometimes difficult for new people to navigate. Katherine
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<br><br><br><br><br>I am curious about that Aerobika too. For now, the saline nebulizing clears <br>my lungs at the end of the day. <br> <br><br>