Arachnoiditis: Looking to talk with others

Yes what Dr Tennant says makes sense--much more simple. However I only discovered him last week. I had done my own research on the subject and had determined that I had all the classic reasons to have arachnoiditis. Plus all the recommendations were not to have any more injections are invasive procedures. So when my doctor suggested these procedures I said no. At that time I contacted my long life long chiropractor who is very knowledgeable. And he at that time which was years ago said I needed to address the inflammation and got me on the MSM and watching my diet. I use one of those a large large exercise balls and lay back on it to give myself kind of Chiropractic adjustments rolling backwards on it. And I do stretches. I stretches that hurt and hold them for about 30 seconds. And I take the Young Living sulfurzyme which has strong MSM and that has worked better than the product that my chiropractor offered me. And it's been several years now. And I'm getting better. Although I still have difficulty walking for any distance at all because of all of the spinal stenosis and vertebrae problems and discs that were removed with no Fusion. Try that unstable spine. I recommend the most the most Simple Solutions. I do have to take Tramadol and Flexeril maybe once every two or three months because of the terrible leg cramps I get that are so severe that I can't stand it. But for the most part if I get in the right position with pillows under my belly I can make those go away right away. My arachnoiditis is in my lower back. I am trying hard to keep it from progressing. Dr. Tennant on one of his YouTube had talked about not using opioids and he had named three medications that were she actually referred to potentially curing the underlying cause Which is information. And now I haven't been able to find that YouTube again for the names of those medications. Maybe you can find them. Because I would like my regular doctor to be aware of this so that I can get those drugs if I need them. I no longer plan to go to any more spinal specialist because all of those experiences have turned out with negative results. I hope you find some relief and make progress. Best wishes.

Dr. Tennant has a website and E-mail address where you can get information on the drugs that he recommends. The E-mail is tennantfoundation9@gmail.com and the website is http://www.arachnoiditishope.com. Good luck.

I actually have not found Dr Tennant's exercises and diet. Can you direct me as to where I can find these?

I generally follow his diet, but not religiously. It is also hard to exercise because my feet burn terribly when I am on them for too long. I take some of the supplements: R-Lipoic Acid, PEA, Vitamin B1, Turmeric, Curcumin, Magnesium. I also take diclofenac, and I was taking methylprednisone (steroid), but my doctors talked me out of continuing because it can cause many bad side effects such as bone loss. Have you found any relief from Dr. Tennants protocols? I haven't found anything that has helped significantly.

Some doctors want me to take Neurontin or Lyrica. I experienced amnesia when taking them and did not make a difference
Is anyone taking dies meds?

Hello @kenyalama,

I took Neurontin for about 3 weeks when I had Shingles. It helped with the pain. I did feel foggy when I took it and slept a lot but I never experienced amnesia.

I found it very helpful for the nerve pain associated with Shingles.
Please remember that everyone reacts to medicines differently.

I took a very small dose, 100 mg as needed. Are you taking a higher dose?

Hello!
I am not taking Neurontin or Lyrica. While taking Neurontin I woke up from a nap after returning from a pleasant trip to New York City and I could not remember what time it was or what I had done in the morning
Scary!
But yes, everyone reacts differently to medicines.
I am on Dilantin, Backifen, Magnesium etc and a dilaudid spinal pump for a relentless Trigeminal neuralgia but none of that helps with either the arachnoiditis and pelvic floor issues caused by it
For one block plus I need a scooter or wheelchair
Thank you for your work as a volunteer.
I read everything I can about all my conditions but sometimes I end up frustrated. Nothing new fir many years.
I even tried hyaluronic injections in the spine to dissolve the adhesions ( Dr. Tacz Lubbock Texas . No one is doing that fir what I can read ?