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MAC & Bronchiectasis | Last Active: Apr 14 3:02pm | Replies (9325)Comment receiving replies
Replies to "Hello! I am so happy to connect with a group who I can relate to with..."
I have bronchiectasis and have also been diagnosed with atypical cystic fibrosis and now, of course, MAC. My CF doc has me using the nebulizer twice a day. I take a couple puffs of albuterol before my treatments. The saline loosens and thins the mucous so you can get it up easier. The albuterol opens the airways which is why I use that first. Initially, I was given Symbicort for my inhaler but it caused my voice to change (I could barely talk) and I totally felt like I was suffocating. It affected me in many ways, all bad. I was put on a steroid to counteract the affects and changed to the albuterol or Proair. I do much better with those. They are supposed to last 4 hours. The Aerobika is also supposed to loosen the mucous in the lungs. I use that after my saline treatment. Linda
<br><br><br><br><br><br>I have not had any side affects with the Symbicort – it is just that <br>Katherine mentioned that these inhalers should help us cough up the sputum, and <br>the Symbicort does not make me cough – so I just wonder if some of the others <br>might be more beneficial. Pam<br><br><br> <br><br>
Thanks @lindam272,Linda, all these ideas really help us all! Our bodies and reactions are so different! Personally the first time I was given Albuterol it triggered a horrid migraine so I just can't use it. Because of those nasty migraines I also tried but had to STOP due to migraine triggering: Xopenex HFA, Advair, Pulmicort 200 mcg, Asmanex 220!
So I was delighted when I finally found no issues with my current Qvar and Atrovent.
Again, thanks for sharing what works for you .. that is what our community is all about! Hugs! Katherine
Will do Katherine. This is how I found out I could not use Breo,checked with the pharmacist. I am lactose intolerant. Sounds like you do your research also! Have a great weekend. Rosie