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@colleenyoung

@patrassi, I'm so pleased you saw my message. Please note that I removed your personal email from your message. We recommend not sharing personal contact information on the public forum. Feel free to use the secure private messaging to exchange email addresses. I also encourage you to share in the forum for the benefit of others too.

How are you doing Patrassi? How is your son?

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Replies to "@patrassi, I'm so pleased you saw my message. Please note that I removed your personal email..."

Hi ! Thank you for your attention!
My son had another surgery in Brazil September 2019 and he is taking just one medication now and he is seizures free . I am so glad and thankful for his health.
I hope I could help others with our history .
I answered your request in a private message .
Thank you for your attention
Best wishes

Hi @collenyoung, Good Morning
Thank you very much for introducing me to @patrassi. I am already in contact with her :-).
I wish you a nice Sunday!
Kind regards, @santosha

Hi @colleenyoung,
Yesterday, I have talked to @patrassi. We had a long and very valuable conversation. Thank you very much again for putting me in contact with @patrassi. If I can be of any help to anyone, today or in the future, please let me know and feel free to contact me. It will be a great pleasure to help!!!
Hi @patrassi,
Thank you so much again for sharing your experience with me and my husband yesterday afternoon. You have given us much comfort and hope at this moment I am preparing myself for the LITT surgery. This is priceless! MUCH GRATITUDE for your time and help.
Kind regards,
@santosha

Hi Colleen. I am scheduled for LITT at the Mayo on 6/30 and would love to hear from anyone who has had this procedure. The only person I can find is @patrassi. You suggested using "secure private messaging" as a contact tool but I can't figure out how to use it. Can you direct me to a place where I can find instructions? Also, have you seen other people who use this site who have given information about personal experiences with LITT? Thanks