← Return to Tremors post kidney transplant

Discussion

Tremors post kidney transplant

Transplants | Last Active: Sep 4, 2022 | Replies (44)

Comment receiving replies
@rosemarya

@athenalee, Have you and your transplant doctors found any resolution for your tremors? I thought of you couple weeks ago when my labs were drawn and the results made me wonder if my Tacrolimus would be increased. Did you get to speak with the doctors? Do you know if the Tacrolimus or was the culprit in your situation?
And most important - How is the liver doing!

Jump to this post


Replies to "@athenalee, Have you and your transplant doctors found any resolution for your tremors? I thought of..."

Thank you for asking. My liver is doing fine. Unfortunately the rest of me continues to slide rapidly down hill. Tremors are worse, muscle and joint pain is severe, my legs and feet have become numb, feet and hands tingle, fatigue, sharp nerve pains, oral ulcers, and more. I saw a neurologist last month who thinks I have Sjogren’s Syndrome, which the labs I took seem to suggest this. It’s another autoimmune disease that can be associated with PBC, which caused my liver cirrhosis. There’s no cure and I’ve found nothing on post transplant occurrences of it. I’m to see a rheumatologist and an oncologist-hematologist. The rapid onset is disconcerting and the whole ordeal very discouraging after having just gone through liver disease and transplant which I’d hoped was giving me a new happy life!