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forest2005 (@forest2005)

Small Fiber Neuropathy, Pain + Seeking Solutions

Neuropathy | Last Active: Jun 23 5:43am | Replies (18)

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@amandajro

Hello @forest2005 and welcome to Mayo Clinic Connect. Thank you for sharing your story with the community. From reading your post, it is clear the pain seems to be the greatest struggle. Because of that, and your interest in seeking new ways to care for your SFN, you will notice I have updated the title of your post to allow more members to find your post and share their experiences on pain and seeking solutions.

Members such as @maryflorida @steeldove @rwinney @artscaping and @johnbishop all have shared about their journey with SFN and may have additional information on new studies and medicine.

What are you currently doing for your pain management?

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Replies to "Hello @forest2005 and welcome to Mayo Clinic Connect. Thank you for sharing your story with the..."

LIDOCAINE PATCHES, CBC topical cream- haven't found one that really helps. I have tramadol however it doesn't help.

I am using three Lidocaine patches everyday, a topical compound from my GP and Zolpidem to sleep. I have tried light therapy, PT, swimming, loosing weight and still nothing but misery. I hate to sound negative however no medical provider really took a serious interest in truly helping me. I guess I am feeling sorry for myself and simply giving up.