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rw (@rwlovell)

Restless legs syndrome (RLS) and mirtazapine

Depression & Anxiety | Last Active: Aug 13 6:44pm | Replies (64)

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@vhn

Elizabeth,

Thank you for sharing your experiences! I'm actually scheduled for blood work, so the timing is great for me to bring this to my doctors' attention when reviewing the results. My grandmother has had to have blood infusions for iron deficiency. She's nearly 93, but there still is the possibility that there is a genetic component to my RLS experiences beyond aging.

Forgive my ignorance, I'm not familiar with MMJ? Google leads me to believe it is medical marijuana derivatives?

I still have intermittent neuropathy, too, following a MVA. I started on Gabapentin initially to address the neuropathy, without understanding until later that Gaba also helps with anxiety. I continue to take Gabapentin on the regular, and definitely notice if I miss too many doses.

I work in BioPharma, so I'm always intrigued to learn what works AND WHY! LOL

I'm so glad, Elizabeth, that you have found some relief and a proper diagnosis. It's a pleasure to "meet" good folks along the journey. I will keep you posted on my journey to wellness. I wish you continued good health!

Kind Regards,

Vanessa

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Replies to "Elizabeth, Thank you for sharing your experiences! I'm actually scheduled for blood work, so the timing..."

Hello, Vanessa. @vhn, @johnbishop, @suecreader
I overlooked mentioning something important in my message to you. The weighted blanket!

It's wonderful! It's been a big help for me, to the point that now that the weather in Florida is warming up, it keeps me, especially my legs pretty warm. So, I need the weight, not the constant warmth. What to do? The weight helps so much, with my legs and feet, cramping, back, hips and pretty much whole body. It's also good for me emotionally. The hugging it gives has helped me through the covid19 isolation as well as the normal, sometimes extreme anxiety of life. I do recommend using it, especially since you already have one and know how wonderful it can be.

Another thing to consider is your grandmother and her health. My grandfather died when I was a child with pernicious anemia. My son has extremely low B, as do I, that we must replace with strong prescription drugs. When the ferrous results showed my iron levels, they were extremely low and are only now, 2 years later while on 2 iron tablets daily, are the results in the low normal range. Still lower than we'd like, but not requiring IV replacement which was a possibility. Apparently, it takes a while for the body to adjust, but I'm better.

Since I know about my grandfather's illness, I mention it to all my doctors on first visit or if something comes up that might be related. It's important and apparently is in my case genetic. I take my supplements for several things and give myself B12 shots as well. My son takes a prescription B replacement daily that costs over $100 monthly, not insurance covered. These are keeping us both walking!

Through all this junk, all these years, I've realized this is the kind of thing most physicians don't consider, and hormones, basically some of the issues causing much of my health problems. Primary aldosteronism, again long time getting diagnosis with years of extremely low potassium, high or low blood pressure, then high sodium and thyroid went wonky. So, everything sort of got involved and now. After addressing all these things, there are many improvements in my body and life.

Blessings, Vanessa. May you have the best doctors with the most inquisitive minds ever and find the causes, not just treat the symptoms.

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