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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
I, too, have a cavitary nodule in my right upper lobe but it has decreased in size. So I keep waiting. I don't know if I have MAC but continue with cscans every three months. Your testimony is encouraging. The bronchiecticus (the spelling defies me!) is something I can live with, but I am concerned about being able to work while taking meds if I do have a bronchoscopy and am diagnosed with MAC. I just celebrated half a year of working with a holiday party for over thirty people. Your story and others' experiences have truly helped me from panicking. When and if I do begin taking medication I certainly will be back for advice!
Happy New Year 2017 to us all! Kathryn
Replies to "I, too, have a cavitary nodule in my right upper lobe but it has decreased in..."
Kateherine,
You are so sweet and encouraging. I feel better here where i can learn and be better informed, plus the A+ support from members. Ill be reviewing more of the forum and making those notes.
Im glad my dr next week will listen and send me where we think its best. He is a rheumatoligist but acts as my primary too.
I also have a pain specialist that i see the same day, she is so supportive, caring, and smart. Before going to this practice, i had DNA testing for best medication and susepbtibility (sp?) They are now usung this testing to help other patients.
Have a good evening,
Julie
Hi Julie, I am curious about your reference to having DNA testing for best medication. Were you tested to find out the medications that might harm you and those your body could handle? I ask because I have so many allergies.
<br><br><br><br><br>Hi Julie, may I ask your pulmonologist's name? There are supposedly two <br>very good pulm drs there. I have a friend seeing one there now, and from what I <br>learned from him, he is being treated similarly to how I am at the Mayo. So, it <br>appears they are on top of things there too. -Terri M.<br> <br><br>
<br><br><br><br><br>Julie, I too live in S.C. but, I beat feet to the Mayo in Jacksonville. So <br>glad I did. They were able to improve my quality of life ten fold! Try to <br>get down there if you can. -Terri M.<br> <br><br>
Hi windwalker, I will be moving to SC, soon. Where in SC do you live? I also use the Mayo in Jacksonville.
<br><br><br><br><br>Hello, I live in Bluffton, near Hilton Head. You?<br> <br><br>
Inlet cardio and polmunary, murrells inlet. I see Dr Chandler. Dr young is there too, he has abusy schedule so i could not see him. They say by referral only.
Hoping you get appointment easily.
Hugs, Julie
<br><br><br><br><br>Do you feel like they are good drs?<br> <br><br>
Hi i replied by message earlier, i was having a hard time figuring where this pist went. Apoligize if i miss anyone elses, its hard just having my phone. Pls message me if i dont reply soon enough.
The DNA was for opiods, antidepressants, NSAIDS, and was administered fro Proove Sciences. If anyone needs their number i can get it. From my understanding they can run other tests for different medication classes.
It tells you also if you have reactions that are dangerous or if you need to divide doses insead of takibg all at once.
Julie
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@jewel8888 .. Julie, I PROMISE you that if you read the past pages of this Forum .. take notes . you will ABSOLUTELY be able to know if your new doctor "IS" qualified .. not just "sounds" qualified. How will you know? BECAUSE thorough educating yourself on these pages you will KNOW exactly WHAT/HOW/WHEN he should be doing various things .. questions he should be asking etc! Please do your "due diligence" in educating yourself .. remember .. it is YOUR body .. YOU must be your own best advocate .. no one else! Please keep us posted on how it goes .. we are here for you every step of the way on this our shared journey! Hugs! Katherine