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Ashamed: I think about (and plan for) dying. Do you?

Lung Cancer | Last Active: Aug 5 8:32am | Replies (213)

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@waterboy

Merry, I am just being honest. I have severe COPD...almost little cough (sporadic), no phlegm, mainly just shortness of breath with exertion. I have a wonderful pulmonologist, Dr Niven, at MAYO, Rochester. He has me on three nebs... Bravana x2, duoneb x4, Budesinde x2, arythamyacin tab x2, and albuteral as a rescue inhaler. I will be in Rochester 5/27... lung function test and a nitric oxide exhaler test. I just had cataract surgery both eyes. Along with my Alpha 1.

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Replies to "Merry, I am just being honest. I have severe COPD...almost little cough (sporadic), no phlegm, mainly..."

@waterboy- Good morning. Of course, you are being honest, and this is the place to vent and to be honest! Ah, so it's severe COPD. Well, I'm glad that you have some upcoming tests to see what needs to be changed to help keep you comfortable and maybe live more fully. I hope that you will let me know the test results and any changes that are made on your behalf.

I had cataract surgery years ago. What a difference, eh?

Hi there fellow copder. Yep it's a pia but it is what it is.
I have severe copd and if that's not enough, my poor decrepit lungs also have bronchiectasis and pseudomonas (a nasty drug resistant bacteria)
I have lots of sputum and spend an hour every morning and another one every evening doing airway clearance . Don't ask.
You don't want to know!
But with all that I don't desaturate and consequently am not on supp O2. I just helped my housekeeper put the laundry away and am sitting here recovering my breath. O2 96% on room air. Sometimes I wish I could turn it up and breathe better.
( housekeeper? Yes. I started saving for home health care when I was diagnosed with severe copd in 2010. No nursing home for me. Without being able to travel or eat out or spend much money there's plenty in that account. I live alone and no way could clean this place)

I also have had two cancers, the second one caused by extensive radiation for the first one and have terrible digestive issues as a result .

But with all that and a clearly limited quality of life, I do have pleasure in my life. There is so much to watch and to read . And so many interesting people to meet on support groups .

And silly optimist that I am I always hope it will get better. Summer is almost here.