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Anyone have Laryngeal Sensory Neuropathy?

Ear, Nose & Throat (ENT) | Last Active: Nov 26 4:47pm | Replies (191)

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@erikas

@joanna48 Welcome to Mayo Clinic Connect, a place to give and get support.

We are happy you found Connect too.

You'll notice I moved your question to an existing discussion on larynx sensory neuropathy. I did this so you could connect with members like @avmcbellar @arlinebringhurst @tkubby @kimduncan1211 in a central location.

You may wish to scroll through the previous posts in search of information and connection.

May I ask how you are managing larynx sensory neuropathy and MAC lung disease?

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Replies to "@joanna48 Welcome to Mayo Clinic Connect, a place to give and get support. We are happy..."

Hi Erika. I only recently self diagnosed with larynx sensory neuropathy. The specialists who have seen me so far have yet to catch up! I research health issues in depth reading a variety of material including medical journals . I did this with MAC which was identified in 2016. Fortunately have been stable for 2 years. I refused treatment in 2017 after I learned about some of the side effects caused by prolonged use of the 3 antibiotics that are the standard treatment. I am now interested in the different medications that might relieve my LSN. I have a good speech pathologist and a general practitioner (regular Doctor). I am adapting to small meals of soft food and no talking while eating. My health could be a lot worse ...I'm aware of this. I would like to know whether LSN is an uncommon complaint?? Most of the posts on the discussion of this date back to 2019.