COVID vaccines and neuropathy

I believe both of you, as I had the same thing happen after my Pfizer shot. It can't all be coincidental!

Sorry, I meant to say health problem. Didn’t realize the misspelling.

@chezpl69- It probably isn't a coincidence but your immune system responding. But to have it for so long is a question that you have gone to your doctor about, taken control of. Research is going on constantly concerning unusal cases, wither as a result of the virus itself and the vaccines. Let's hope that there are answers very soon!

Taking a risk after reading these posts, I got the first Pfizer vac this past Thurs., 4/15. Unfortunately, I believe my neuropathy (still officially undiagnosed - perhaps SFN), while reduced in pain prior to the 15th, might be coming back and more intense. No sleep last night due to anxiety, which makes it worse. A wonderful cycle!! (sarcasm here). I am hoping it all will only be temporary. I encourage all to report your symptoms to v-safe at https://www.cdc.gov/coronavirus/2019-ncov/vaccines/safety/vsafe.html

Hello @nmocarski, Welcome to Mayo Clinic Connect. Thanks for sharing your experience the Pfizer vaccine. I have had both of my Pfizer vaccines without any neuropathy related symptoms. I also have small fiber peripheral neuropathy but only have numbness for the symptoms. I had a sore arm after the first one after receiving the shot and the second one was similar except the day after the vaccine I had extreme fatigue.. I also reported my symptoms with V-Safe. I am glad they are trying to capture data from everyone who is taking the vaccines.

There is another discussion you may be interested in joining - Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

Do you mind sharing how you found Connect?

I believe that you can take both but has to be a minimum 4 hours apart by I would first check with my endocrinologist. Helen

My endocrinologist believes it is my immune system responding this way, but unfortunately I can't get my neurologist and primary doctor to do the same. I will wait for the blood test results and go from there. Also the endocrinologist suggested I get in touch with Mount Sinai hospital as they are conducting studies on post vaccine effects. I also got a name of another neurologist for a second opinion if I don't get a call back soon , things move too slowly with him. I might also request an earlier visit at my oncologist since I'm not do for a check up for couple of months. Thank you for listening.

Thank you!!

I’m curious to know how many people in this discussion, who believe their neuropathy symptoms increased or returned after receiving the vaccine, also have an autoimmune disease? Other than minor tremors and joint pain, which were previously undiagnosed, my symptoms only started a few months ago. As I’ve reported here, these symptoms did increase after the vaccine and now, along with tremors, both my legs and feet are numb, my feet and hands tingle often, and I have severe back, neck, feet, and joint pain. The neurologist believes my increased symptoms were caused by the autoimmune disease (Primary Biliary Cholangitis) I have and probably a related one, ancillary to PBC, I just tested positive for (Sjogren’s Syndrome). Both of these diseases can cause PN. He also said that my reaction to the vaccine is most likely due to my autoimmune disease.

I found this article on the subject interesting: https://www.forbes.com/sites/judystone/2021/02/17/covid-19-vaccines-and-autoimmune-disease/?sh=4e20c0514892

When i had a similar reaction after my first Pfizer shot thE end of January, I called pfizer to ask whether I should get the second one, fearing the sx might get even worse. They told me at that time they had had NO reports of neurological side effects. I had read people online saying they had had such effects but apparently no one was reporting them. Probably, in part, because their docs were like yours, thinking it’s a coincidence. Maybe it is but how will they ever discover a relationship if no one reports these problems to the companies? I never got this reaction after the flu or shingles vaccines.