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Liver transplant - Let's support each other
Transplants | Last Active: 4 days ago | Replies (1617)Comment receiving replies
Thank you for the articles. I will read them--but it is very hard and discouraging.
He is in Seattle Washington and we are in Dalton Georgia (just south of Chattanooga), so he has had to go through it alone. With covid (and his condition) we couldn't go out there. It has been very stressful. He just texted me. He didn't give me his weight, but they took 8.5 liters (over 14 days). (I'm into measurements). That is 0.61 liters/day--down from 0.83. My guess is his weight will be down again ~137#s and he is a tall man. He just moved and can't find his scale. We (my wife Suzanne and I) are vaccinated and he got his first shot Monday. At least one of us should be able to get out there soon. Have a nice evening, Mike.
Replies to "Thank you for the articles. I will read them--but it is very hard and discouraging. He..."
It sounds like your son is on the right path. I was diagnosed in the summer of 2019 with an autoimmune disease which caused stage 3 liver cirrhosis. I developed varices and had several upper GI bleeds due to bursting varices, and had the TIPS procedure. If your son’s doctors suspect he may be in danger from varices, getting the TIPS will be beneficial. It’s a noninvasive surgery. Please keep encouraging your son to stay away from alcohol, eat well (lots of protein, fruit, veggies), and exercise (walking is great). The healthier he is, the better chance he has for forestalling the need for a transplant and doing well if he does need one. I agree with Rosemary that the liver can be amazingly resilient. While my disease is also incurable, I did reasonably well for nearly a year and received a liver transplant in August. Please let us know of your son’s progress.
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There is such a thing as too much information. And I think I sent you too much. Put the articles away until - or - if - they are ever needed.