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Liver transplant - Let's support each other
Transplants | Last Active: 4 days ago | Replies (1617)Comment receiving replies
Mike, I I have to say it again - I am thrilled that he has made such a successful turnaround in his liver condition! The liver is an amazing organ.
I had a transplant in 2009 when I was 60. And I was told early on that every patient can experience different symptoms, even if they have the same liver disease.
My disease was a progressive disease without a cure.
Having a paracentesis every 2 weeks, sounds like a good plan because as the fluid builds up, it gets extremely uncomfortable. If there is a good side, its not painful, just boring.
This is the Mayo Connect Transplant Blog where staff posts regularly.
https://connect.mayoclinic.org/blog/transplant/
Here are some articles I selected for you
https://www.mayoclinic.org/tests-procedures/liver-transplant/about/pac-20384842
https://www.mayoclinic.org/diseases-conditions/alcoholic-hepatitis/symptoms-causes/syc-20351388
Mike,
Yes, it is an emotional rollercoaster. It can also get to be a lonely journey. We are here anytime.
Do you have to travel far for treatment?
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Thank you for the articles. I will read them--but it is very hard and discouraging.
He is in Seattle Washington and we are in Dalton Georgia (just south of Chattanooga), so he has had to go through it alone. With covid (and his condition) we couldn't go out there. It has been very stressful. He just texted me. He didn't give me his weight, but they took 8.5 liters (over 14 days). (I'm into measurements). That is 0.61 liters/day--down from 0.83. My guess is his weight will be down again ~137#s and he is a tall man. He just moved and can't find his scale. We (my wife Suzanne and I) are vaccinated and he got his first shot Monday. At least one of us should be able to get out there soon. Have a nice evening, Mike.