It's called restless leg syndrome and can be brought on by a number of medications...

Hi Linda, sound good .. I also take meds middle of night when I get up .. vitamins a GREAT idea since they interfere with SO many meds!

My only question is your reason for probiotic instead of Rifampin first thing in the morning?

Linda, I am a great note keeper .. just looked back in my notes .. I was on 4 antibiotics plus other meds but will just print out what my schedule was .. maybe it might be of some help to you or others .. hope so! Hugs to all!
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NOTES ON TAKING ANTIBIOTICS
Wake up am probiotic and Rifampin on empty stomach (There is no known interaction between Probiotic and Rifampin in our records.) Ripampin Take this medicine on an empty stomach, either 1 hour before or 2 hours after food with a full glass of water. Absorption of rifampin is reduced by about 30% when the drug is ingested with food. Also 4 hour before vitamins Since I had the side effect of odd feelings in legs at night .. I tried to take it as early in the a.m. as possible. (RIFAMPIN CAN INTERFER WITH LIVER ABSORBSON OF SYNTHROID)

Ethambutol and Avelox (sleep disturbance) with Azithromycin: after breakfast with a full glass of water
8 hour before or 4 hours after multi vitamin

Bedtime: take regular p.m. meds & multi vitamin, Evista, Lipitor and pm probiotic.

Separate multi vitamin & probiotics from antibiotics by at least 4 hours if possible)

Also a note I made re: using ginger supplements for nausea: Ginger - scientists at the Rochester University Medical Center found that taking ginger supplements with standard anti-vomiting drugs beforehand can reduce the nausea that often accompanies chemotherapy treatment by 40%. (IDEAS FROM GROUP: ginger and licorice tea was great for me and ginger lollies)

Remember .. All medicines may cause side effects, but many people have no, or minor, side effects.

Katherine, I used your notes from your previous post to make my schedule, but didn't realize I could take probiotics and Rifampin together. That makes life a little easier! I will take both at 7am and at 10am with Zith at 8 with breakfast and Ethambutol at 2, 4 and 6pm. I may try to take a couple Ethambutol together as I seem to be tolerating those pretty good. Having a little trouble with the Rifampin today, so I'm hesitant to double up on those just yet. Will see how I do the rest of the day. You are the best!! P.S. Can I take vitamins 4 hours after my last Ethambutol? If so, I could take at 10 and not have to do in the middle of the night.

What magnificent (that is the right word) tips.  I feel, for the first time, that I am not alone.Thank you all.Terry

Linda, my notes say YES! It says: or antibiotics 4 hours after multi vitamins. However unless your vitamins cause nausea or other issues .. I really like that idea! Absolutely no possibility of an issue.

Also I happen to find in my notes: Have V6 and V12 checked. MAC treatment can affect both Vitamin 6 and 12. See: https://www.ncbi.nlm.nih.gov/pubmed/6269259 and http://factmed.com/study-ISONIAZID-causing-VITAMIN%20B12%20DEFICIENCY.php

You might request to have that checked periodically .. frankly I find many of us are aware of more issues than our doctors!

Good luck on this our share journey! Hugs! Katherine

@128128terry11t, Terry, you definitely are NOT alone .. you have just been lucky enough have found the nicest community of caring supportive people that I just WISH I had had available to me when I was first diagnosed. I remember I was so scared .. felt so alone. Even if you do have a family or friends .. they can't really understand what you are going through .. the emotions .. the fears. That is why I do what I do .. I just don't want anyone to ever feel what I felt. Know that we are all here for you .. just lovely people you will find out! Hugs to you! Katherine

Can't believe I found you all!  It is such a gift ... beyond measure.  You know MORE than the doctors around here and I live in the NYC area!! I know that I am not alone and feel so comfortable with all of the caring people that are sharing their journey so that a newbie such as myself can learn the tips that can be life altering.  Terry

@128128terry11t, you're right Terry, we ARE right here .. every step of the way .. each of us in our own way .. each of us on our own but shared journey! Hugs to you! Katherine

Not sure about dividing up drug. I take 4 ethambutol at a time and asked both doctor and pharmacist if I could divide it. Both checked the literature and found no permission to do this. They said it needs to hit the bloodstream at full strength. A weak dose may not knock out the bacteria and let it morph into a different bacteria that resists the medicine.
David

@david1952, David, thank you SO much for jumping in .. this is a GREAT piece of information for our Forum! In fact I am going to add it to my notes! Good job! Hugs to you! Katherine