← Return to Diagnosed with Cerebral Venous Sinus Thrombosis (CVST)

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@billykegs

Hi.
My name is William Gallagher. In 1985 I was 19 years old. I was in college but I was working a summer job on a construction site.
It was seven days a week but we'll paid and I needed the money.
One day I realised something was wrong with my vision. As time went on I noticed my balance was off, my speech was sometimes slurred, my coordination was amiss, my ability to think and converse was impaired.
I went to all kinds of doctors and given different meds that I can barely remember but I knew something was seriously wrong.
This pandemic has given me the opportunity after all these years to finally try to find out what happened. It has ruined my life.
The only clue I have is I feel better when I can feel I have a cold coming on. As far as I know that is in the sinus area. That coupled with cognitive difficulties seems to point to CVST. I've had an MRI and it was fine. I'm now waiting to see a neurologist.
It's a struggle. Doctors have taken hundreds of blood tests over the years and all is fine. I'm on my own with this and I'm not going to give up. Thyroid, sugar, allergies, insulin resistance, liver, ammonia I've chased them all. This avenue though looks the most promising.
I'm sorry this post is short on specifics but if it offers anybody any hope or inspiration that's has to be good. Don't give up. Be the captain of your own ship. If you know something is wrong and your tests come back clear keep fighting. The internet is the gift that no library can match. Now is the age.
Thank you.

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Replies to "Hi. My name is William Gallagher. In 1985 I was 19 years old. I was in..."

Hello @billykegs and welcome to Mayo Clinic Connect. You are welcome to share as much or as little as you would like and are comfortable with. Would you please come back and share an update once you meet with the neurologist?