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NIH-All of Us Study & Rare Diseases Clinical Research Network

Just Want to Talk | Last Active: Aug 16 10:52am | Replies (19)
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@Erinmfs

@johnbishop as an AllofUs Research Study participant, I responded to this survey during the pandemic, here are the results:
https://www.rarediseasesnetwork.org/news/2021-02-10-COVID19-survey-preliminary-results

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Replies to "@johnbishop as an AllofUs Research Study participant, I responded to this survey during the pandemic, here..."
John, Volunteer Mentor | @johnbishop | Apr 15, 2021

I've taken quite a few of the surveys but was most interested in the DNA part where they take a blood sample and exam you at a health facility. Unfortunately the only ones they offer are further away that I care to drive so I just take part in the other stuff when I can. I was surprised that Mayo Clinic does not participate which is where I go for my primary health care.

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