COVID vaccines and neuropathy
I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?
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Superb, Sue!
Hi Everyone
I did have a fever yesterday & was real tired. I stayed in bed all day.
I feel better today but I saw they are concerned with the J&J with blood clotts.
Does anyone know how you can tell if you have a blood clot or getting one?
Now I am all scared.
Thank you
Genie
@tigereye I just heard @colleenyoung mention that they usually start in lower extremities, would appear reddish, you would feel pressure/pain in your leg and the the spot would be warm to the touch. For more information, please see some additional information I found on Mayo Clinic's website.
-Blood Clots Basics: When to see a Doctor
https://www.mayoclinic.org/symptoms/blood-clots/basics/when-to-see-doctor/sym-20050850
Recently, my neuropathy increased in my toes. Yesterday I had my first Covid vaccination. I'm glad I experienced the increase in pain months BEFORE the vaccination rather than after, or I would have been erroneously convinced there was a cause and effect relationship between the two. (I'm sharing my experience just in case it might be relevant to someone else.)
Any pain or swelling in your legs - thighs, ankles? See the doctor- otherwise you’re probably fine.
Hi Genie- I can certainly understand your fears. The CDC and J&J are looking closely at these rare clotting episodes to see if they can be induced by the vaccine. I believe there were 4 or 5 women under 48 years old who had them
"events or thrombocytopenia in patients who have recently received the J&J COVID-19 vaccine, including severe headache, backache, new neurologic symptoms, severe abdominal pain, shortness of breath, leg swelling, petechiae (tiny red spots on the skin), or new or easy bruising. Obtain platelet counts and screen for evidence of immune thrombotic thrombocytopenia." Since I am not a medical doctor I can't explain the terms, but you can google them.
As always, if you have anything that changes with your health that is unusual call your doctor. Did you have J&J?
I appreciate it so much! Still trying to gather all the information I can at this point. So scary and unexpected, especially during this crazy time!
Hi @tigreyes2004 I can understand your concerns. Your doctor may be better to advise you knowing your medical history. I have not researched what type of blood clots occurred with the J&J vaccine. Were they an arterial thrombosis, venous thrombosis, or both? Each may have different symptoms. Your doctor can warn you of which symptoms to look out for.
I read on the computer & TV that this is very rare but they are just pausing J&J to make sure of the safety concerns. It said to look for signs up to 3 weeks. I see my Neuropathy dr. next week so I will tell her my concerns.
Everything is a risk so I will think positive. I feel a little safe from the Covid now but will still follow the guide lines & war my masks.
Hi Merry
I had the J & J vaccine. I feel good today. Just the low grade fever & tired & at first a little nausea but when I heard this morning about those 6 people I got scared. Thank you so much for giving me the details on what to look for.
My. dr. talked me in to getting the shot so that is why I did. My husband also had the shot at the same time I did & he had no symptom's except they drew blood with him & he had a sore arm but he is fine.
I live in Az. & that is the shot they seem to be giving. The Maderna one is the one that I know a few people got really sick for 3-4 days with that one.
Thanks again
God bless
Genie