Please share your experience with the Diep Flap Procedure
I had a bilateral mastectomy and had implants removed due to an infection. I am now at a point that I can consider reconstruction. At this point, expanders/implants are not an option for me. Has anyone had a diep flap procedure and what are your thoughts about the procedure and recovery. Any feedback is so appreciated.
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Thank you again for your reply. Trying to figure out the best procedure is very anxiety producing. I have heard of the Center for Restorative Breast Surgery in New Orleans. I have a phone appointment with them next Tuesday. Who did you go to? Does he do this type of surgery all the time or does he do other types of plastic surgery as well?
Just a little background. First cancer right breast 2007. Second cancer left breast 2018. Lumpectomy and radiation both times...tamoxifen the first time, anastrozole the second. Tested positive for genetic mutation. The genetic test results came back 9/2019. I immediately started looking for a surgeon and plastic surgeon. That was a nightmare. I found a surgeon who came with good reviews that was crude and obnoxious. I told her that I wanted nipple sparing mastectomy with diep flap. She said no to both. She had a setup with a plastic surgeon and she said I had to have implants because of my age...69 at the time. She kept saying “another nipple in the bucket” referring to the mastectomy. She was obnoxious the whole appointment. I was at my wits end as to how to go about getting this done. Then there was a lecture by a plastic surgeon. He was all business. He brought pictures and went into detail about how he did the surgeries. I made an appointment with him and I felt like I was home free! At our first appointment I told him I was at the lecture and I told him about the other surgeon and he asked me what I wanted done and I told him bilateral nipple sparing mastectomy with diep flap. He said he could not do the nipple sparing surgery as I had had radiation and my tissue was damaged. He asked to see my belly and told me he could do the diep. He had his associate come in...the diep usually takes two microsurgeons and not all plastic surgeons are microsurgeons (be sure to check that out when you do your research) and he took a look and they said yes. Then I had to find a surgeon for the mastectomies and he gave me a name. It just happened to be the partner of the obnoxious surgeon. I was not wholly impressed with her, but realized that the bigger surgery and the most important and involved was the diep. I went with her and everything was set up for April 17, 2020 and then covid shut everything down. I had the surgery in July and everything was like clockwork. He was totally honest and everything happened just as he said. During my last surgery I did not want anesthesia and he was ok with that, so we talked the whole time he was working I just could not see what he was doing. I asked him how many of these surgeries he does and he said about 200/year. I am not sure if that is the diep or all of his breast surgeries. He also does other plastic surgery and does microsurgery if you have lymphedema which is a worry for a person that has had breast cancer. My advice to you is to focus on the plastic surgeon and he/she will probably refer you to a surgeon that he/she works with. The plastic surgeon is the most important. Just understand that this takes quite a while. The doctor will want you to be totally healed before proceeding with the next stages of the process. I had told him before the surgery that he was the doctor totally in charge of my surgery and he was and when I saw him before the first and second surgeries I just knew that everything was going to be ok and it was. The third surgery, as I said I was awake and we talked through the whole thing. At no time was I afraid of any of it with him in charge. First surgery mastectomies/diep flap. Second surgery was revision of the work done in the first surgery and removing scar tissue. Third surgery was forming the nipples. You will have some feeling in your breasts but not much in the nipple area as that is transplanted skin.
@catann, you may also want to read the experiences of @jenni17 @vivlaj @meliss @tana @sandyjr @dianamiracle @cathyhand @bomashisha @betsyk and others in these discussion. Loads of good stuff shared.
- Diep Flap Procedure https://connect.mayoclinic.org/discussion/diep-flap-procedure
- Bilateral mastectomy and DIEP flap reconstruction experiences https://connect.mayoclinic.org/discussion/bilateral-mastectomy-and-deip-flap-reconstruction-experiences
Thank you so much for your reply. This has been very helpful.
Hi sandyjr. I'm 69, booked in for DIEP (left and right) early this May 2021. I had tubal ligation (clips) at the age of 42. I'd like to know any answers to your question of "extra precaution" for surgery. I would not have thought of asking that question, ever! Thanks in advance.
Following.....I am in similar situation, just had a pre DIEP CT scan.
Hi Pamela, welcome to the Breast Cancer group. How did your pre DIEP CT scan go? When is your surgery?
I just saw this. There seem to be no precautions that I needed for the surgery. I had it in July 2020 and everything was very smooth and was exactly as my doctors told me it would be. I have no regrets. Also I had no pain. It did kind of take the wind out of my sails but I’m used to being pretty busy and being tired and sitting around healing crimped my lifestyle… LOL. I had the diep/reconstruction in one big long surgery. I would assume the drugs they gave me and the stress of the surgery made me a bit weak. I immediately got up and moved around, walked a little, went outside got fresh air...All things considered it was pretty easy and painless.
CT Scan with contrast was surprising quick and painless.....I see my PS in 2 weeks and hoping he gives me good news that her will proceed with a Bilateral
DIEP