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Veruska (@veriska)

Prolia treatment for osteoporosis

Bones, Joints & Muscles | Last Active: Jun 9 6:39pm | Replies (813)

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@rashida

@JustinMcClanahan I am reading so many positive comments here on Prolia, yet there’s a Facebook page filled with negative comments on Prolia! Now I am confused and don’t know what – or who – to believe!

I started on Prolia in January 5 this year because my physician suggested I take it as a preventative measure because at 74 I am more likely to have a major fracture if I fall. I have slight osteoporosis at the top part of my spine (base of my neck? Don’t know what the vertebrae numbers for that). After reading all those horror stories on the Facebook page – accompanied by a stack of online information that makes my head spin – I am considering not taking any more doses. My second dose is due on July 5.

What should I do??

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Replies to "@JustinMcClanahan I am reading so many positive comments here on Prolia, yet there’s a Facebook page..."

Good afternoon @rashida, Unfortunately Justin is no longer with Connect. I am happy to respond to your inquiries about osteoporosis and Prolia. One of the differences between Facebook and Connect is the use of mentors and moderators who review every post for authenticity. So….in regards to Prolia, I will be starting it next month after 2 years on Tymlos which was chosen because of a bad reaction to bisphosphonates.

That sensitivity has made me wary. I have found good information by calling the manufacturer, Amgen, and talking to a medical professional. We know that everyone reacts differently in both positive and negative experiences. The studies that have been done indicate that only about 10% of the folks on Prolia have some kind of side effect. Because of the time between infusions, it is not possible to create a test situation. You need to have the entire subcutaneous dosage. For example, I will be staying in the clinic for 3 hours to make sure I have no reaction. If there is a reaction after that, I will proceed to the ER or Urgent Care for assistance.

Would you like to talk to the manufacturer's medical staff? Here is the number: 800 772-6436. Please let me know how it goes for you. Is your clinician a PCP, an Endocrinologist, or another type of specialist?

May you be safe and protected from inner and outer harm.
Chris