Sudden hearing loss and an echo

@travelgirl Did you ENT ever mention the vestibular exam Mine sent me to a specialist to have my ears checked . Then gave me ear exercises to do as I was spinning also I didn't throw up but was nauseous . If he didn't mention this ask him about it . The specialist really put me through a lot of test . But I didn't have to see him as the ear exercises the ENT gave me was all I needed . The crystals in the ear where out of balance so these exercises after a month did the trick .

@lioness and @joyces

Great idea and advice about the vestibular exam. I think it’s a must do for travelgirl after the MRI results come back.

FL Mary

@travelgirl @lioness @joyces @imallears You can google Epley maneuver to get exercises that you can try at home to reposition the crystals in the inner ear to see if that helps.
Tony in Michigan

@tonyinmi
Thanks for the information......what a great place to learn new things from experienced people.

FL Mary

The disease is BPPV, and there is a book about it: BPPV (Benign Paroxysmal Positional Vertigo): What You Need To Know; P.J. Haybach, R.N., M.S.; Vestibular Disorders Association (VEDA); 2000. This was one of three books that I nagged VEDA into publishing; I edited, designed, arranged for printing and initial distribution. The other two are Meniere's Disease and Balancing Act. All three are now out of print, but available from ABEBooks.com, which specializes in small press books, many of them used, out of print. If there's any serious interest, given some time, I can dig through my files from 20 years ago and provide PDFs of the books. All three of these books were designed to help people cope with inner ear disease and have many suggestions of how to live well in spite of inner ear disease. Since then, there have been other books published (at least two) about Meniere's; I haven't searched for newer books about BPPV or the much more general topic of living with inner ear disease (Balancing Act).

Also, BPPV is often present along with other inner ear diseases. It's fairly prevalent among older folks, usually as more of an annoyance than a serious problem, although a tiny percentage of those with BPPV are really ill with it. Dr. Epley, who perfected the maneuver of the same name, practiced in Portland, Oregon--a sort of center for inner ear problems 30 years ago with Dr. Black's vestibular clinic (which is still there), Dr. Epley's practice, and VEDA, which started as the Dizziness and Imbalance Assn. All of us who worked on the three books back in the late 90s were very familiar with inner ear disease: both the author, Ms. Haybach, and I lived with one every day, and the Exec. Dir. of VEDA had a wife who had a serious case of BPPV. The salesman for the printing company we used also had Meniere's, albeit a mild case. So, a bunch of "wackos" put together some books in the hope that it would help people to live normal lives in spite of whatever disease they had.

Hey @travelgirl, hope things are better today and that you're getting some answers. What amazing coaching you've been getting here from @tonyinmi @imallears @joyces @lioness @judyca7 and others. We eagerly await your next update. Until then, thinking of you.

YES. I lost a little hearing slowly for a number of years but still could hear pretty good. One morning I woke up and could hardly hear. I also have a echo in both my ears. I went to Doctor who prescribed prednisone for 30 days. It did not help. I had a MRI of my head and did not find anything. The ENT doctor stated I should get hearing aids, which I did. I still have echo in my ears. The hearing aids help but I cannot hear clearly because of the echo. I cannot hear when more people are speaking. Music is difficult to hear - it sounds like noice. I have been to a number of doctors with no help so far. I have Phonak hearing aids with the latest technology. and cost a lot of money. My ears feel like they are plugged up. I have not heard of a lot of people that have this condition. I am looking for help to get rud if the echo and hopefully hear better. I live in the Seattle WA area.

Hi to all. I can see this post is already a few years old. It turns out that I ran into it as I was doing some internet searching about sudden earing loss and echos. I am suffering this condition since 5 month now, I am 44 years old After different treatments including one month of heavy corticoids and negative MRI, my ENT confirmed I would not get better. What is bothering me the most is not the earing loss but the echos, all sounds around me and especially music is echoing and upsetting me. I was wondering if your condition has changed.. how do you feel now? If you found a way to get rid of the echos?Are you using earing aids? Any advices are welcomed. Thanks before hand.
@travelgirl
@karinzeigler

@annick24 Welcome to Mayo Clinic Connect.

I'm sorry that your hearing loss is permanent. I can only imagine that echos would be unsettling.

Below I have linked an ENT group post where members @lacy2 @nrd1@cus @danr have discussed a similar topic that may be of interest to you.
- Hollow echo distortion in ear? Scared https://connect.mayoclinic.org/discussion/hollow-echo-distortion-in-ear-scared/

Connect has an active Hearing Loss group on Connect. @julieo4 @tonyinmi @ken82 are a few of our Mentors and Superusers you will notice in this group.

May I ask what your provider/doctor has advised regarding the echos?

Maybe ETD (Eustachian Tube Dysfunction) or PET (patulous eustachian tube) go to ENT