I am experiencing the same problem. Feeling pins and needles while exercising, sudden anxiety, anger, fear or increase in room temperature or in sauna.
Doctor initially suggested me to go with B12 since I have B12 deficiency. However in another blog, I have seen a person with sufficient vitamin B12 level experiencing the same problem.
Probably the next step would be to see a Neurologist. I have seen dermatologist and he ruled out the possibility of cholinergic Urticaria since to be a skin problem, something has to be visible in the skin.
Anybody has any idea or tried something that worked?
Hello @mashm888, I would like to add my welcome to Connect along with @amandajro and other members. Here's some information I found on The Foundation for Peripheral Neuropathy's website on Vitamin B12 Deficiency Neuropathy: https://www.foundationforpn.org/what-is-peripheral-neuropathy/causes/vitamin-nutrition-deficiency/. It is one of the supplements I take for my small fiber peripheral neuropathy symptoms but I don't have a vitamin B12 deficiency. Can you give us an update after you see a neurologist?
Hello @mashm888, I would like to add my welcome to Connect along with @amandajro and other members. Here's some information I found on The Foundation for Peripheral Neuropathy's website on Vitamin B12 Deficiency Neuropathy: https://www.foundationforpn.org/what-is-peripheral-neuropathy/causes/vitamin-nutrition-deficiency/. It is one of the supplements I take for my small fiber peripheral neuropathy symptoms but I don't have a vitamin B12 deficiency. Can you give us an update after you see a neurologist?
Sadly wIthout an examination and testing by a neurologist or other specialist I don’t think anyone here can pinpoint a disease or diagnosis. We are patients like yourself and can only share our own experiences.
I’ve seen 4 Neurologist save your money get full blood panel done along with White blood cell count etc . My experience with all the doctors and Neurologist nothing they can do and think your crazy when you know your not . Look at your family history where I started ! Blood work every 3 months . My blood work comes every tome high white blood cell count other diseases can intertwine with SFN deficiency, certain antibiotics in the scheme of it all with SFN there is no telling what had caused it but you can go backwards as to what you’ve been around what meds have been taken
even antibiotics as mentioned can prematurely cause Neuropathy as well
Lots of variables no answers do your own diligence as I have I still don’t have an answer just more questions and I’m in a wheelchair now .
Seems that after tread mill walking - 3 miles, moderate rate - my lower legs are highly sensitive and on fire. Very uncomfortable, so I have stopped such exercise, in favor of just walking around the neighborhood.
Also, I have to ask: does Gabapentin 'cause' or 'aggravate' my PN (feet, lower legs only so far, but spreading up the legs). I started taking small dose (300) about 6 years ago for what appeared as restless leg syndrome. I had muscle cramps and unease at night, so my doc prescribed Gab to see if would work. Muscle cramps and leg muscle spasms reduced, but only because I started taking Apple Cider Vinegar supplements, which reduced the cramping almost completely. I am just wondering if the Gab aggravates the PN.
Seems that after tread mill walking - 3 miles, moderate rate - my lower legs are highly sensitive and on fire. Very uncomfortable, so I have stopped such exercise, in favor of just walking around the neighborhood.
Also, I have to ask: does Gabapentin 'cause' or 'aggravate' my PN (feet, lower legs only so far, but spreading up the legs). I started taking small dose (300) about 6 years ago for what appeared as restless leg syndrome. I had muscle cramps and unease at night, so my doc prescribed Gab to see if would work. Muscle cramps and leg muscle spasms reduced, but only because I started taking Apple Cider Vinegar supplements, which reduced the cramping almost completely. I am just wondering if the Gab aggravates the PN.
Seems that after tread mill walking - 3 miles, moderate rate - my lower legs are highly sensitive and on fire. Very uncomfortable, so I have stopped such exercise, in favor of just walking around the neighborhood.
Also, I have to ask: does Gabapentin 'cause' or 'aggravate' my PN (feet, lower legs only so far, but spreading up the legs). I started taking small dose (300) about 6 years ago for what appeared as restless leg syndrome. I had muscle cramps and unease at night, so my doc prescribed Gab to see if would work. Muscle cramps and leg muscle spasms reduced, but only because I started taking Apple Cider Vinegar supplements, which reduced the cramping almost completely. I am just wondering if the Gab aggravates the PN.
I have had neuropathy for many years & the discomfort continues to get worse but comes in waves. I take 350mg of Lyrica daily. Walking for any short distance is difficult because of lower back pain caused by the stiffness of my feet, but I can ride my road bike 20 miles or more without much discomfort. My feet are numb most of the time with minimal pain but I do sometimes get pains & cramps up my calves.
For relief I take a cramp med (OTC) that dissolves under the tongueI & I do some medical cannabis tinctures with CBD & THC for pain - a CBD only tincture for relaxation plus occasional THC gummies also for relaxing & sleep. None of this is a cure but it certainly helps me deal with it all, without side effects.
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Hi,
I am experiencing the same problem. Feeling pins and needles while exercising, sudden anxiety, anger, fear or increase in room temperature or in sauna.
Doctor initially suggested me to go with B12 since I have B12 deficiency. However in another blog, I have seen a person with sufficient vitamin B12 level experiencing the same problem.
Probably the next step would be to see a Neurologist. I have seen dermatologist and he ruled out the possibility of cholinergic Urticaria since to be a skin problem, something has to be visible in the skin.
Anybody has any idea or tried something that worked?
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1 ReactionHello @mashm888 and welcome to Mayo Clinic Connect. It sounds like you are very proactive with seeking answers for your symptoms, which is fantastic.
How long have you noticed these symptoms?
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2 ReactionsHi,
Thank you very much. probably 1/2 months
Hello @mashm888, I would like to add my welcome to Connect along with @amandajro and other members. Here's some information I found on The Foundation for Peripheral Neuropathy's website on Vitamin B12 Deficiency Neuropathy: https://www.foundationforpn.org/what-is-peripheral-neuropathy/causes/vitamin-nutrition-deficiency/. It is one of the supplements I take for my small fiber peripheral neuropathy symptoms but I don't have a vitamin B12 deficiency. Can you give us an update after you see a neurologist?
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2 ReactionsSure I will. But my doctor wanted to take it for next 30/45 days before I see a neurologist. so few more days to go.
Meanwhile anybody got any definite clue or already pinpointed the diseases?
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1 ReactionSadly wIthout an examination and testing by a neurologist or other specialist I don’t think anyone here can pinpoint a disease or diagnosis. We are patients like yourself and can only share our own experiences.
-
Like -
Helpful -
Hug
1 ReactionI’ve seen 4 Neurologist save your money get full blood panel done along with White blood cell count etc . My experience with all the doctors and Neurologist nothing they can do and think your crazy when you know your not . Look at your family history where I started ! Blood work every 3 months . My blood work comes every tome high white blood cell count other diseases can intertwine with SFN deficiency, certain antibiotics in the scheme of it all with SFN there is no telling what had caused it but you can go backwards as to what you’ve been around what meds have been taken
even antibiotics as mentioned can prematurely cause Neuropathy as well
Lots of variables no answers do your own diligence as I have I still don’t have an answer just more questions and I’m in a wheelchair now .
Seems that after tread mill walking - 3 miles, moderate rate - my lower legs are highly sensitive and on fire. Very uncomfortable, so I have stopped such exercise, in favor of just walking around the neighborhood.
Also, I have to ask: does Gabapentin 'cause' or 'aggravate' my PN (feet, lower legs only so far, but spreading up the legs). I started taking small dose (300) about 6 years ago for what appeared as restless leg syndrome. I had muscle cramps and unease at night, so my doc prescribed Gab to see if would work. Muscle cramps and leg muscle spasms reduced, but only because I started taking Apple Cider Vinegar supplements, which reduced the cramping almost completely. I am just wondering if the Gab aggravates the PN.
-
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Helpful -
Hug
1 ReactionI m taking Antiacid and Omiprazole for long time. Not sure about Gab. Do u still feel the pins needles?
I have had neuropathy for many years & the discomfort continues to get worse but comes in waves. I take 350mg of Lyrica daily. Walking for any short distance is difficult because of lower back pain caused by the stiffness of my feet, but I can ride my road bike 20 miles or more without much discomfort. My feet are numb most of the time with minimal pain but I do sometimes get pains & cramps up my calves.
For relief I take a cramp med (OTC) that dissolves under the tongueI & I do some medical cannabis tinctures with CBD & THC for pain - a CBD only tincture for relaxation plus occasional THC gummies also for relaxing & sleep. None of this is a cure but it certainly helps me deal with it all, without side effects.
-
Like -
Helpful -
Hug
2 Reactions