← Return to SARS-COV2 Pandemic Serosurvey in a Rare Disease Population Research

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@Erinmfs

I wanted to add something that is not common knowledge here, and that is if you are seen or participate in a research study at the NIH, you may not receive any diagnosis or results! That was a question I had in my first study and in this one. In my first study I was able to speak to the researchers onsite in Bethesda, but did not receive a diagnosis code. Same here, I won't know if I have antibodies to the virus here, I won't receive results. I did goto Mayo Neurology after my first NIH study, and we spoke about my experiences. I finally did request EHRs from the NIH and received them. I came home from Bethesda (my first study) with a DVD of my MRIs. I was told this is because the NIH has researchers, not doctors.

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Replies to "I wanted to add something that is not common knowledge here, and that is if you..."

Really good to know beforehand, Molly. Thanks for this information!