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Idiopathic Small Fiber Neuropathy Research
Neuropathy | Last Active: Apr 4 8:41am | Replies (132)Comment receiving replies
Hello @solobeee, Welcome to Mayo Clinic Connect. Unfortunately, small fiber PN is not a condition I would wish on my worst enemy so to speak. I'm glad you found Connect where you can learn what other members have shared helps them and hopefully find some relief for the pain. There are a couple of discussions you may wish to join to read the experience of other members including myself. I have small fiber PN among other conditions but I only have numbness without the pain. My neurologist said I'm in the 20% group of folks with PN who don't have the pain.
- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/comment/405325/
- Living with Neuropathy – Welcome to the group: https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/
- Illusive Diagnosis, Pain Increasing: https://connect.mayoclinic.org/discussion/illusive-diagnosis-pain-increasing/
What helps me is taking each day one step at a time and learning as much as I can by researching my condition and reading everything I can find on new research and treatments. Are you able to share a little about any treatments you've tried or thought about trying?
Replies to "Hello @solobeee, Welcome to Mayo Clinic Connect. Unfortunately, small fiber PN is not a condition I..."
I know this is a response to a post from last year, but I am new to this group. Do you, or anyone know of someone who has urinary incontinence due to SFPN? My research has shown that this can be caused by SFPN, but I have yet to connect with someone with this condition...And what might be done about it? Thanks to everyone for any help.
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I’m new to this diagnosis, about 13 months. The pain is increasing as is my dosage of gabapentin! I’m not finding much encouragement reading this sight regarding treatment nor research. I’m going to naively ask has anyone found any relief from a diet? I’ve completely stopped drinking alcohol, 10 months even though this wasn’t an issue. I’m a celiac / hypothyroidism gal tested positive by skin graft.
Also are any of you having gastric issues?
Thanks!