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They found a mass: How do you cope with anxiety and all the tests etc?
Lung Cancer | Last Active: Nov 25, 2022 | Replies (157)Comment receiving replies
Hello Becky
It was a very scary event, there was probably 4 inches of keytruda left and my sister was there, I said omg there is unbelievable pain going down both my arms I sat up from the bed and all of a sudden it starts going across my chest my sister looked out the door a flagged the nurse she said I should of told her sooner but it happened so quickly, I said give me the steroid injection now and it went away, but they never did a ekg or nothing. now I'm scared the 21st to have this again, it did not do that the 1st time when they used my arm this was the 1st time of using this port and I am not sure I care for this port. I will be talking to the doctor before I go for the treatment. your right it may have been on to high of drip. do you still take that drug ?
Replies to "Hello Becky It was a very scary event, there was probably 4 inches of keytruda left..."
@loula- I think that sometimes the flow of the drip is too fast and the needle moves and the solution gets into your tissues. This does hurt like crazy. This happened to me last year for the first time when I had the contrast for my CT. It wasn't a comfortable thing at all. It hurt and my arm swelled.
Has this stopped for you now?
@loula good morning Cynde. With the rollout of the new Connect platform I feel like I have lost track of some people and some things so I was looking for your posts. I am so sorry that catching up meant hearing you had an incident with your treatment. You have gotten some real good suggestions for going forward. I would add that you tell the nurse you would like her to stick around until you’re sure that same incident isn’t repeated. There is such a high likelihood that it was a one time event but I understand your concern about a repeat. I truthfully don’t think it is necessarily related to the port but more likely has to do with rate of flow. I am hoping you are like so many of us, have a one time event and that is the end of it. Other than that incident, can you catch me up on how you have been feeling? Nancy
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@loula I’m so sorry this happened. We’re you and your sister alone in a room? Make sure the doctor is aware before you get your next infusion! Also, if you are keeping a journal, write down the whole episode so you will remember exactly what happened
I was able to get 6 more infusions of rituxan after my reaction, but then it quit working for me. I had the nurses run the infusion slowly each time after I had the reaction and all went well.
Now, you want to just relax and not think about the incident. Just make sure the doctor knows about it and can give you a good explanation. Will you try to do this?