@gingeerw, @englelee Thank you, Ginger. I'm checking into DBT right now! And, I'm starting some thought to find out what my triggers may be, and have that cup of tea or whatever. I love that idea and think it might work for some memories. Any suggestions about PTSD from years of unmanaged pain? Thanks for the help. Bless you. elizabeth
@gingeerw, @englelee Thank you, Ginger. I'm checking into DBT right now! And, I'm starting some thought to find out what my triggers may be, and have that cup of tea or whatever. I love that idea and think it might work for some memories. Any suggestions about PTSD from years of unmanaged pain? Thanks for the help. Bless you. elizabeth
@ess77 I will be curious to hear your thoughts on DBT, how it works and if it works for you!
PTSD from unmanaged pain will take working on relieving the pain you have now, I am not a doctor, nor do I play one on TV. My take on it all, as I don't think I have PTSD from pain, is to address the issue. For example, write a letter to that pain, talk to that pain. Explain how it has affected your life for so long, how it has hampered you from feeling healthy, how you want to come to an agreement that there is no reason for it to stick around. It is kind of a reverse psychology to your own mind, and perhaps repeated comments that when the triggers come, you say, "No, we already talked about this before. You're no longer welcome here." Then do something to stop that trigger, something that will draw you up short. This is all off the top of my head, and may not be beneficial to you. For me, addressing issues head-on takes their power away. Do you think this might help you?
Ginger
@ess77 I will be curious to hear your thoughts on DBT, how it works and if it works for you!
PTSD from unmanaged pain will take working on relieving the pain you have now, I am not a doctor, nor do I play one on TV. My take on it all, as I don't think I have PTSD from pain, is to address the issue. For example, write a letter to that pain, talk to that pain. Explain how it has affected your life for so long, how it has hampered you from feeling healthy, how you want to come to an agreement that there is no reason for it to stick around. It is kind of a reverse psychology to your own mind, and perhaps repeated comments that when the triggers come, you say, "No, we already talked about this before. You're no longer welcome here." Then do something to stop that trigger, something that will draw you up short. This is all off the top of my head, and may not be beneficial to you. For me, addressing issues head-on takes their power away. Do you think this might help you?
Ginger
Yes, this makes sense. It's part of what I do now. I refuse to claim the illnesses w/which I've been diagnosed. I refuse them, I don't own them, they certainly don't own me and I don't include them as part of my body. Diagnosed, yes or maybe. Mine or my - NO. They no longer define me. Wow! When did that happen? It has helped change my entire attitude toward illness and toward my life.
Actually, Ginger, it has relieved much of the pain and discomfort!
I've been working on these changes for some time now. That's why these Connect groups have been a Godsend for me. I share with folks who understand, some who are dealing with many of the same issues, maybe even for the same or similar or worse reasons. That's such a blessing... awful, eh? Sounds like I'm thankful for others' suffering. No, I'm thankful to know I wasn't chosen for some sadistic reason by someone somewhere to be the only person who feels this pain or anxiety or has so much at once. It's comforting to know I'm not alone.
I think one of the worst things about illnesses and pain and certainly PTSD is the isolation. The aloneness. I don't feel that anymore, even with quarantines. I have you, Teresa, Jake, John, Sue, Chris, Colleen, @seaspray, @fiesty76 and all the other angels on this site. And, you have me. My experiences. Then comes healing.
I have less pain in my life now than for 40 years. Less physical and emotional pain. I just realized that - off most pain meds....no cortisone shots, no script pain meds but robaxiin for cramping, cymbalta for fibro/anxiety and MMJ. All the others I rejected.
My, Connect, changing my thinking patterns and habits, becoming much more positive. Somewhere I changed. Now, the real me is coming back. I hope many others experience this with their relationships with themselves, pain, family, friends - get this help from this place. What a phenomenal gift you have to give.
So, more research into DBT. One day I'll share it with my son. His PTSD is severe and this will be important to him. It appears to be related to changing cognitive thinking. Interesting.
Thanks. Lots to think about. Maybe someone will read this and it will lead them on a similar journey. I hope so.
Bless you and all who walk here.
Elizabeth
Yes, this makes sense. It's part of what I do now. I refuse to claim the illnesses w/which I've been diagnosed. I refuse them, I don't own them, they certainly don't own me and I don't include them as part of my body. Diagnosed, yes or maybe. Mine or my - NO. They no longer define me. Wow! When did that happen? It has helped change my entire attitude toward illness and toward my life.
Actually, Ginger, it has relieved much of the pain and discomfort!
I've been working on these changes for some time now. That's why these Connect groups have been a Godsend for me. I share with folks who understand, some who are dealing with many of the same issues, maybe even for the same or similar or worse reasons. That's such a blessing... awful, eh? Sounds like I'm thankful for others' suffering. No, I'm thankful to know I wasn't chosen for some sadistic reason by someone somewhere to be the only person who feels this pain or anxiety or has so much at once. It's comforting to know I'm not alone.
I think one of the worst things about illnesses and pain and certainly PTSD is the isolation. The aloneness. I don't feel that anymore, even with quarantines. I have you, Teresa, Jake, John, Sue, Chris, Colleen, @seaspray, @fiesty76 and all the other angels on this site. And, you have me. My experiences. Then comes healing.
I have less pain in my life now than for 40 years. Less physical and emotional pain. I just realized that - off most pain meds....no cortisone shots, no script pain meds but robaxiin for cramping, cymbalta for fibro/anxiety and MMJ. All the others I rejected.
My, Connect, changing my thinking patterns and habits, becoming much more positive. Somewhere I changed. Now, the real me is coming back. I hope many others experience this with their relationships with themselves, pain, family, friends - get this help from this place. What a phenomenal gift you have to give.
So, more research into DBT. One day I'll share it with my son. His PTSD is severe and this will be important to him. It appears to be related to changing cognitive thinking. Interesting.
Thanks. Lots to think about. Maybe someone will read this and it will lead them on a similar journey. I hope so.
Bless you and all who walk here.
Elizabeth
Yes, this makes sense. It's part of what I do now. I refuse to claim the illnesses w/which I've been diagnosed. I refuse them, I don't own them, they certainly don't own me and I don't include them as part of my body. Diagnosed, yes or maybe. Mine or my - NO. They no longer define me. Wow! When did that happen? It has helped change my entire attitude toward illness and toward my life.
Actually, Ginger, it has relieved much of the pain and discomfort!
I've been working on these changes for some time now. That's why these Connect groups have been a Godsend for me. I share with folks who understand, some who are dealing with many of the same issues, maybe even for the same or similar or worse reasons. That's such a blessing... awful, eh? Sounds like I'm thankful for others' suffering. No, I'm thankful to know I wasn't chosen for some sadistic reason by someone somewhere to be the only person who feels this pain or anxiety or has so much at once. It's comforting to know I'm not alone.
I think one of the worst things about illnesses and pain and certainly PTSD is the isolation. The aloneness. I don't feel that anymore, even with quarantines. I have you, Teresa, Jake, John, Sue, Chris, Colleen, @seaspray, @fiesty76 and all the other angels on this site. And, you have me. My experiences. Then comes healing.
I have less pain in my life now than for 40 years. Less physical and emotional pain. I just realized that - off most pain meds....no cortisone shots, no script pain meds but robaxiin for cramping, cymbalta for fibro/anxiety and MMJ. All the others I rejected.
My, Connect, changing my thinking patterns and habits, becoming much more positive. Somewhere I changed. Now, the real me is coming back. I hope many others experience this with their relationships with themselves, pain, family, friends - get this help from this place. What a phenomenal gift you have to give.
So, more research into DBT. One day I'll share it with my son. His PTSD is severe and this will be important to him. It appears to be related to changing cognitive thinking. Interesting.
Thanks. Lots to think about. Maybe someone will read this and it will lead them on a similar journey. I hope so.
Bless you and all who walk here.
Elizabeth
@ess77, What an inspirational post, Elizabeth, about your transformational mindset! So true that physical pain can be so isolating and a fruitful place to allow more painful thoughts and attitudes to grow.
Whatever our maladies and some with incredible complexities, finding a place at Mayo Connect where others understand is one of the best finds in discovering that we are not "alone". Listening and sharing are two of the best therapies and both are a trademark of Connect participants. Thank you for sharing how your journey has brought you to a place of new outlook and personal growth.
The PTSD has been rearing its vicious head as I am now dealing with bladder cancer and all of the spreading my legs for treatment. I do okay until the fallout afterwards. Lot of time lost and not wanting to continue on with the BCG. Weekly treatments and no time to adequately regroup. The PTSD still can keep me in its grip. Not sure if it's worth it.
I have been absent dur to health issues. I hope you were able to continue with the BCG treatments. I am so very sorry that you have had to go through this.
Yes and I’ve just realized it. After yrs of health issues and depression. I’m off all meds they pumped me up on and I’m heading to Orlando to try an herb that is designed to rewire your brain. It’s scary and excited all st the same time. If one more person says go to therapy, I’ll scream. Been to many and I’m the therapist in every one. I’ve researched and told doctors what to try on me and they do. I’m done listening to them. If I can help anyone out there, please ask. I will send I info on Orlando if u want. I’m going June 4. I will share with everyone. We r in this together
Yes, this makes sense. It's part of what I do now. I refuse to claim the illnesses w/which I've been diagnosed. I refuse them, I don't own them, they certainly don't own me and I don't include them as part of my body. Diagnosed, yes or maybe. Mine or my - NO. They no longer define me. Wow! When did that happen? It has helped change my entire attitude toward illness and toward my life.
Actually, Ginger, it has relieved much of the pain and discomfort!
I've been working on these changes for some time now. That's why these Connect groups have been a Godsend for me. I share with folks who understand, some who are dealing with many of the same issues, maybe even for the same or similar or worse reasons. That's such a blessing... awful, eh? Sounds like I'm thankful for others' suffering. No, I'm thankful to know I wasn't chosen for some sadistic reason by someone somewhere to be the only person who feels this pain or anxiety or has so much at once. It's comforting to know I'm not alone.
I think one of the worst things about illnesses and pain and certainly PTSD is the isolation. The aloneness. I don't feel that anymore, even with quarantines. I have you, Teresa, Jake, John, Sue, Chris, Colleen, @seaspray, @fiesty76 and all the other angels on this site. And, you have me. My experiences. Then comes healing.
I have less pain in my life now than for 40 years. Less physical and emotional pain. I just realized that - off most pain meds....no cortisone shots, no script pain meds but robaxiin for cramping, cymbalta for fibro/anxiety and MMJ. All the others I rejected.
My, Connect, changing my thinking patterns and habits, becoming much more positive. Somewhere I changed. Now, the real me is coming back. I hope many others experience this with their relationships with themselves, pain, family, friends - get this help from this place. What a phenomenal gift you have to give.
So, more research into DBT. One day I'll share it with my son. His PTSD is severe and this will be important to him. It appears to be related to changing cognitive thinking. Interesting.
Thanks. Lots to think about. Maybe someone will read this and it will lead them on a similar journey. I hope so.
Bless you and all who walk here.
Elizabeth
U sound like me and I’m taking my health into my own hands. I was told I was bipolar fir a decade and it turns out I’m not. I was defined by it. People thought oh she just bipolar when I called them out on their shit. They won’t b accountable. Good luck, u sound strong and amazing
Yes and I’ve just realized it. After yrs of health issues and depression. I’m off all meds they pumped me up on and I’m heading to Orlando to try an herb that is designed to rewire your brain. It’s scary and excited all st the same time. If one more person says go to therapy, I’ll scream. Been to many and I’m the therapist in every one. I’ve researched and told doctors what to try on me and they do. I’m done listening to them. If I can help anyone out there, please ask. I will send I info on Orlando if u want. I’m going June 4. I will share with everyone. We r in this together
@lee1959 Good for you. I was once loaded up with a cocktail of psych meds. What a mess!! All those people know how to do is prescribe and tell their life story. Neuropathy is due to going off that cocktail cold turkey. That was in 2010.
I tried therapy again and could not get past the fear and distrust I have...Wasn't fair to the therapist to have me wanting to rip her to shreds with words. I feared it would go beyond words. Just can't get past it. Therapy must help some or there would not be so many mental health professionals (?) out there. GRRRRRR.
Interesting as I felt like I was being the therapist as well. Surely must be a disorder somewhere in their DSM.
Be interesting to see how Orlando pans out for you. Think my brains are too badly fried by prior psych meds and perverts as therapists.
Wishing your well and that this journey is fruitful. I am sincere that you find help and not being snide.
@gingeerw, @englelee Thank you, Ginger. I'm checking into DBT right now! And, I'm starting some thought to find out what my triggers may be, and have that cup of tea or whatever. I love that idea and think it might work for some memories. Any suggestions about PTSD from years of unmanaged pain? Thanks for the help. Bless you. elizabeth
@ess77 I will be curious to hear your thoughts on DBT, how it works and if it works for you!
PTSD from unmanaged pain will take working on relieving the pain you have now, I am not a doctor, nor do I play one on TV. My take on it all, as I don't think I have PTSD from pain, is to address the issue. For example, write a letter to that pain, talk to that pain. Explain how it has affected your life for so long, how it has hampered you from feeling healthy, how you want to come to an agreement that there is no reason for it to stick around. It is kind of a reverse psychology to your own mind, and perhaps repeated comments that when the triggers come, you say, "No, we already talked about this before. You're no longer welcome here." Then do something to stop that trigger, something that will draw you up short. This is all off the top of my head, and may not be beneficial to you. For me, addressing issues head-on takes their power away. Do you think this might help you?
Ginger
@gingerw, @hopeful32250 , @seaspray, @artscaping, @fiesty76@colleenyoung, @johnbishop +
Hello, Ginger. Thank you.
Yes, this makes sense. It's part of what I do now. I refuse to claim the illnesses w/which I've been diagnosed. I refuse them, I don't own them, they certainly don't own me and I don't include them as part of my body. Diagnosed, yes or maybe. Mine or my - NO. They no longer define me. Wow! When did that happen? It has helped change my entire attitude toward illness and toward my life.
Actually, Ginger, it has relieved much of the pain and discomfort!
I've been working on these changes for some time now. That's why these Connect groups have been a Godsend for me. I share with folks who understand, some who are dealing with many of the same issues, maybe even for the same or similar or worse reasons. That's such a blessing... awful, eh? Sounds like I'm thankful for others' suffering. No, I'm thankful to know I wasn't chosen for some sadistic reason by someone somewhere to be the only person who feels this pain or anxiety or has so much at once. It's comforting to know I'm not alone.
I think one of the worst things about illnesses and pain and certainly PTSD is the isolation. The aloneness. I don't feel that anymore, even with quarantines. I have you, Teresa, Jake, John, Sue, Chris, Colleen, @seaspray, @fiesty76 and all the other angels on this site. And, you have me. My experiences. Then comes healing.
I have less pain in my life now than for 40 years. Less physical and emotional pain. I just realized that - off most pain meds....no cortisone shots, no script pain meds but robaxiin for cramping, cymbalta for fibro/anxiety and MMJ. All the others I rejected.
My, Connect, changing my thinking patterns and habits, becoming much more positive. Somewhere I changed. Now, the real me is coming back. I hope many others experience this with their relationships with themselves, pain, family, friends - get this help from this place. What a phenomenal gift you have to give.
So, more research into DBT. One day I'll share it with my son. His PTSD is severe and this will be important to him. It appears to be related to changing cognitive thinking. Interesting.
Thanks. Lots to think about. Maybe someone will read this and it will lead them on a similar journey. I hope so.
Bless you and all who walk here.
Elizabeth
Yes you have been working on this strategy for quite some time. I am proud of your success and your willingness to share with others. Thank you.
Chris
@ess77, What an inspirational post, Elizabeth, about your transformational mindset! So true that physical pain can be so isolating and a fruitful place to allow more painful thoughts and attitudes to grow.
Whatever our maladies and some with incredible complexities, finding a place at Mayo Connect where others understand is one of the best finds in discovering that we are not "alone". Listening and sharing are two of the best therapies and both are a trademark of Connect participants. Thank you for sharing how your journey has brought you to a place of new outlook and personal growth.
I have been absent dur to health issues. I hope you were able to continue with the BCG treatments. I am so very sorry that you have had to go through this.
Yes and I’ve just realized it. After yrs of health issues and depression. I’m off all meds they pumped me up on and I’m heading to Orlando to try an herb that is designed to rewire your brain. It’s scary and excited all st the same time. If one more person says go to therapy, I’ll scream. Been to many and I’m the therapist in every one. I’ve researched and told doctors what to try on me and they do. I’m done listening to them. If I can help anyone out there, please ask. I will send I info on Orlando if u want. I’m going June 4. I will share with everyone. We r in this together
U sound like me and I’m taking my health into my own hands. I was told I was bipolar fir a decade and it turns out I’m not. I was defined by it. People thought oh she just bipolar when I called them out on their shit. They won’t b accountable. Good luck, u sound strong and amazing
@lee1959 Good for you. I was once loaded up with a cocktail of psych meds. What a mess!! All those people know how to do is prescribe and tell their life story. Neuropathy is due to going off that cocktail cold turkey. That was in 2010.
I tried therapy again and could not get past the fear and distrust I have...Wasn't fair to the therapist to have me wanting to rip her to shreds with words. I feared it would go beyond words. Just can't get past it. Therapy must help some or there would not be so many mental health professionals (?) out there. GRRRRRR.
Interesting as I felt like I was being the therapist as well. Surely must be a disorder somewhere in their DSM.
Be interesting to see how Orlando pans out for you. Think my brains are too badly fried by prior psych meds and perverts as therapists.
Wishing your well and that this journey is fruitful. I am sincere that you find help and not being snide.
Am suffering with PTSD more since COVID. More sensitive and having memories of past trauma that I had forgotten.