Anyone out there living with stage 4 lung cancer?

Posted by nursed2075 @nursed2075, Mar 10, 2020

Is anyone living with stg4 lung cancer? How are they doing?

Interested in more discussions like this? Go to the Lung Cancer Support Group.

@lls8000–- Hello. How are you doing? Hanging in there, lol? With spring fever I think that everyone is antsy. Just checking in!

REPLY

Have anyone taken Afatinib?

REPLY

Did you have a pleurex at any time?

REPLY
@merpreb

@nursed2075- Good morning. I'm checking in to see how you are doing. How is it for you having cancer and having the COVID-19 virus going around? Does it make things more difficult int he hospital when you have treatments?

Jump to this post

REPLY
@colleenyoung

Oh my goodness, @janlanderz. Is this article featuring you?

Jump to this post

Yes.. That is me in the article.. Jan Landerz is just a facebook name that was created many many years ago.. I am actually Janice Maillet

REPLY
@janlanderz

Yes.. That is me in the article.. Jan Landerz is just a facebook name that was created many many years ago.. I am actually Janice Maillet

Jump to this post

@janlanderz Mayo Clinic is now safely treating patients whose care may have been deferred and seeing new patients. Is it possible that regular cancer care is opening back up slowly in Ontario too. I know Canada has been successful in avoiding the stress of COVID cases in the hospital systems. Have you been contacted recently to resume treatment?

REPLY
@merpreb

@lls8000–- Hello. How are you doing? Hanging in there, lol? With spring fever I think that everyone is antsy. Just checking in!

Jump to this post

Hi!, A lot has happened, I’ve found that I’m ALK positive, and started taking oral alectinib on Saturday. I had additional scans done on Friday, and compared to those taken in March, things are progressing. I’ve been hanging in there while the symptoms were progressing too. So, I’m excited to get started with treatment and get things headed in the right direction. Take care!, and have a good week.

REPLY
@lls8000

Hi!, A lot has happened, I’ve found that I’m ALK positive, and started taking oral alectinib on Saturday. I had additional scans done on Friday, and compared to those taken in March, things are progressing. I’ve been hanging in there while the symptoms were progressing too. So, I’m excited to get started with treatment and get things headed in the right direction. Take care!, and have a good week.

Jump to this post

@lls8000- It's always so hard to hear that treatments aren't working after getting our hopes up. How is it going with oral alectinib? Have you had any side effects yet?

REPLY

I had my second chemo treatment and that was the first time they used my port, when giving me the keytruda towards the last of the injection I had sharp pains going down both my arms and then across my chest, they gave me my steroid injections and it went away has anyone ever felt this ? what happened to the other site ?

REPLY
Please sign in or register to post a reply.