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@bonnieb81 You certainly have a lot to think about and plan for: upcoming surgery (with potential bigger surgery), caring for your husband who’s health is declining, a hospital you don’t really like, and wishing you could go to Mayo instead.
Have you looked into respite care for your husband? You might need help for 2-3 months. Or maybe a live-in caregiver who could help both of you. And Meals on Wheels—they could handle meals for both of you. Check with the Agency on Aging in your town or the social workers at the hospital.
Can’t go to Mayo. How about MD Anderson? Or a large medical center or university hospital?
I would suggest that you get 3 small notebooks; 1 for each problem you want to solve. Write down all the info, names, phone #’s, questions, and details so you can find it quickly. I’ve done that to keep track of my doctors, appointments and what they’ve told me. Makes my life a little easier!
Can you maybe start with getting some notebooks and picking 1 problem to start brainstorming with. Get back with us for any questions!
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Thank you, I’ve started so many day timers... plus notebooks... assorted file folders. But I think my problem is my fighting spirit... but I know legal solutions cost $$$$$ and more. I’ve really reached my limit. I want to go forward with the appendeceal (appendectomy) though surgeon said I had option of going through with resection first, more radical of course. I wasn’t pleased with going that route! I didn’t even like that offer!!! It lessened my trust in this 3rd Dr. I had considered all you mentioned even MD Anderson, but for now, just getting ‘out’ is a trial. I’ve had sitters for husband but $20 per hr. ... just too many burdens.. now that I’ve had this 2 yr. communication with Practice mgr. Texas Oncology to no avail (my own orig. surgery for 8-10 yrs dropping me saying “BONNIE we all will go there someday” !!! I suppose he’s speaking of Heaven.... now his very Tx. Oncology merged with my new surgeons practice being Texas Colon Rectal!! I’m totally dismayed! I know this is just TMI,too much info! I’m really losing a lot of sleep! Now in more pain. But thank you for your message. I just wish I could get into Mayo (Jacksonville)