Connect
← Return to (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
Discussion
(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
Thank you folks for all these postings....after 2 years of coughing/ wheezing and bringing up gobs of varying colored mucus nightly...2-5 hour sessions only at night and going to a variety of good Drs...and having all kinds of tests...a bronchoscopy washing revealed mycobacterium Avis complex. It is now at State Lab for sensitivity tests.i will have appt with my pulmonologist here in Wisconsin ( and the infection control Dr he is referring me to) but I am guessing I will consider second opinion with Dr A or go to a specialist at National Jewish...any names there to suggest?? My daughter lives in Denver so that is a plus. Again thanks to all of you...glad I found this site tonight....BLESS Google!
Replies to "Thank you folks for all these postings....after 2 years of coughing/ wheezing and bringing up gobs..."
Boomerexpert...are there specific questions you would like me to ask at the conference if time and format allow?
Yes, Terri. What can we patients do to help persuade funders to do the<br>research needed to find better treatments than the decades old one's<br>currently in use.<br><br>Thanks!<br><br>Terri
@tdrell and @boomerexpert - I'd like to see new drug(s) for NTM that can be inhaled right into the lungs!
Kay S......what made you prefer going to Mayo rather than National Jewish in Denver?? How long did it take to get the appt at National Jewish? Terri S
Connect
@tdrell, just an update ...
The two days (Thursday & Friday, September 15th & 16th, 2016) before your conference on Sept 17th, there is a conference at the same location for health care professionals who diagnose and treat patients with Nontuberculous Mycobacteria (NTM). Here's the link
https://www.nationaljewish.org/Calendar/2016/2016-NTM-Providers
So lots of information going around!
Paula